Hi there,

Have no dx yet but reading on here, it seems my symptoms closely match PN - started with pins & needles/numb spots in feet and legs - this eventually eased off but then moved to hands & fingers. Just when I thought things were improving I have been feeling a bit dizzy/spaced out today. I'm ok laying on the sofa but when I walk around I definitely feel slightly off balance. Is this a symptom of PN or could it be something else?

I'm on Naproxen for backache and taking multi vits with iron +b complex but no other meds.

Appt with neuro at the end of next week.

Luckily I'm on holiday til sept but I feel like I'm wasting the summer sitting around feeling sorry for myself.

--dizziness can certainly result from some types of autonomic neuropathy, though it can also result from a lot of other causes.

Often, people with autonomic neuropathy can have problems with sweat production and with postural hypotension (a fainting feeling upon changing position too rapidly, as the small autonomic nerves are too damaged to compensate by moving blood around the body quickly), as well as with gastric motility.

Many people with small fiber syndromes have some autonomic involvement (especially if diabetes is the cause), though this is often minor/subclinical:

http://neuromuscular.wustl.edu/senso...tml#idiopathic

http://neuromuscular.wustl.edu/autonomic.html

Thanks for that Glenntaj I'll check out those links later.

Feeling worse today - my pins & needles symptoms have eased considerably but I have the mother of all headaches!!! So once again I'm spending the day on the sofa.

Might be a good idea to get checked for diabetes/pre-diabetes (5-hr. glucose tolerance test). Swings in blood sugar levels can cause dizziness in some folks, as well as bring on PN.

Thyroid?

Doc

Thanks - I've had blood tests already - I think I was checked for diabetes & thyroid already but I'll double check at my appointment next week.

If all else fails ask them to check your B6 levels... B6 can be toxic and give you peripheral neuropathy

Well - headaches gone this morning but one of my arms feels a bit strange. I went to scratch my nose and ended up poking my eye instead - took 3 attempts to touch my nose, what's that all about then? Is that a symptom of neuropathy or am I barking up the wrong tree?

Small fiber autonomic or sensory neuropathy can effect the cranial nerves and cause problems with dizziness or vertigo by disrupting the signals from the inner ear.

I have small fiber from sarcoidosis that started in 2002. but i can never get my primary care doctor to understand. she blames everything on fibromyalgia and diabetes(the diabetes started in 2010 long after the small fiber neuropathy that started with the sarcoidosis in 2002)

Some doctors are just morons.

Just been to dr - he thinks I've got labrinthitis again - I've had it a couple of times over the last few years. Once again - on examination I appear to be perfectly normal, in fact I feel almost normal - until I stand up and attempt to walk anywhere - then I just feel drunk.

Is there any link between this and the PN symptoms? I asked the dr but he wasn't sure. This is the third dr I've seen and all they seem to do is shrug their shoulders and say that the neuro will be able to answer all my questions!!

Very frustrating - lovely sunny weather - I just wish I felt up to sitting outside !

My wife had similar dizzy feelings, headaches, bumping into walls, etc. when standing up and it ended up being vestibular migraines. It was found in the MRI. Good luck.