Alberta, you might want to read this:

http://www.whale.to/vaccines/arthritis.html

LymeRx was a terrible failure because of the arthritis it caused in people with the certain marker listed in this article.

You could get tested for it..perhaps a Rheumatologist would be the best one to do it, or an Immunologist.

There is not a large pool of patients getting Rabies vaccine.

This is a page from Drugcite.com on the rabies vaccine:
http://www.drugcite.com/?q=imovax

It is really difficult to predict what will be your long term results.
Each person is different with the antigen markers that predispose to vaccine reactions.

And it is a terrible truth, that most doctors will not want to listen to patients with vaccine reactions.:(

Yes I get it now. And the dr suspected something like that. But couldn't do nothing as the drs have no knowledge in the vaccines. So I was told to go to public health.. So I wonder if there is medication that they give u if it is caused from the vaccine? But right now I take muscle relaxers and advil for it all. And I hope it calms down a bit. How long have you had this issue for now?

Mrsd, do you have these issues to?
And I thank u for these links. My joint pain isn't as bad as it first started but it comes and goes. Which can be horrible. The tjngling is always with me. And I notice it more when I bend over and stuff . And do you have any more links related to the rabies vaccine? Some useful info for sure.

Since July 4, 2013.

However the tingling and prickly sensations went away for quite sometime and then came back.

My back is fine now.

Wow ..And do you find if you do more the tingling gets
Worse?

Have u even thought of gbs? Gullein bare syndrome? Iam making a mention to public health over this. Because I want to be tested.

Like I mentioned before if you are having weakness that is something else and needs to be checked out.

iirc GBS presents itself as weakness and then rapidly causes paralysis and loss of motor function in hours.

If you are having burning and tingling I wouldn't worry about GBS.

I am not sure about my "issues".

When I was around 8 yrs old the new experimental Polio virus was given in our area. My mother decided I should get it...she was paranoid about polio epidemics then. It was a series of 3 injections (which I didn't like then). I recall getting a huge swollen arm after one of them and being ill.

Since then I've had a chronic arthritis. And with the advent of the internet I discovered that the vaccine then given was contaminated with a simian (monkey) virus.
http://www.immunizationinfo.org/es/i...ine-and-cancer

http://www.naturalnews.com/032854_sv..._vaccines.html

While the cancer potential does worry me, I do think my arthritis and possibly some of my PN is a result of this this viral infection I may carry.

http://vec.chop.edu/service/vaccine-...ents/sv40.html

One wonders how SV40 has continued to be found in people when it has been stated that our vaccines do not contain it anymore. Is it spreading person to person, mother to child, or are we being lied to by the vaccine industry?

I really wondering.. I'm going to seek help so I don't end up paralyzed over this. But am waiting for public health to contact me. I no if u search the vaccine and gbs. It's pretty popular. And are u stuck with tingling to?

But wouldn't the tjngling still cause us to be paralyzed over time?

No.

If it's small fiber neuropathy it might cause a loss of sensation.

There are different types of nerves in your body.

Trust me I was in your shoes over a year ago.

My wife and I live in a 3 story home and I was thinking we might have to move because at some point I might be in a wheelchair. I was also terrified of being a burden to my wife.

Obviously that is not the case... I can still run and walk long distances.

Take a deep breath... I know the hell you are in. It's the unknown and the things that might happen next.

It's terrifying.

You will either get better and resolve or you will adjust to your issues and over time your worry about them crippling you will fade.

Don't cherry pick things when you read them.

GBS is not a common diagnosis... 1 in 1,000,000 per year.

Also GBS is rapidly progressive... It's not something you have a mild case of and it waxes and wanes.

Unless you are stumbling over your own feet when walking or can't grasp a pen or your keys you probably don't have it.

Oh but isn't tingling all over body bad and cause paralyzation ? And have u talked with anyone that had this for a few years?

I went to the eye drs and they said my eyes are burning cause they are dry.

Dry eyes may be a sign of Sjogren's syndrome. This affects women more than men, and is autoimmune triggered. It causes neuropathy also.
http://www.mayoclinic.org/diseases-c...n/con-20020275

Tingling is a sensory symptom. When people become paralyzed, it is an attack on the motor neurons which cause movement.
These are two different nerve systems. The motor neurons have insulation on the long axons that carry signals, and this is called myelin. The myelin is not present on all sensory fibers.

Here is a link explaining the types of fibers of nerves that send impulses from the periphery to the brain (sensory):
http://faculty.washington.edu/chudler/cv.html

The majority of sensory fibers do not have myelin (if they do it is less than a motor neuron has). But some have a little. Myelin is shown in yellow in the link chart.
Autoimmune antibodies attack myelin and interfere with signals in those nerves.

There are also special clusters of nerves in a ganglion along the spine just outside the spinal cord. This ganglion is called the dorsal roots. Antibodies and toxins can attack there also damaging signals from the body to the brain.

This explains dorsal roots:
https://faculty.washington.edu/chudler/spinal.html

Most people can repair damages to both areas of neurons. But some genetically lack the enzymes to do this. Research in this area is ongoing now, on how to help those who cannot repair their damages when they happen. Those that can repair do take some time to do so.

So if I have tingling on all my body. And I didn't have sharp stambing pain in the joins down now that is only in the hips and hands and lower arms. Would that cause paralyzed?

Weakness and numbness are more drastic symptoms.

Being paralyzed is a dramatic situation. The muscles lose their
ability to work and that is a consequence of paralysis.

Tingling and other sensory symptoms may precede a GBS, but it typically moves quickly to paralysis of muscles. It is not common.
You would have it already if you were to have it all.

Ok so my chances of having paralysis is slim. ? Usually happens with gbs?

Take a look at:
 

http://neuromuscular.wustl.edu/antibody/gbs.htm

There are differing presentations of Guillain Barre syndrome, and a number can start out with sensory symptoms and then progress to motor ones. There are also vary degrees of severity in a Guillain Barre "attack"--some do not progress to paralysis.

Moreover, as Chronic Inflammatory Demyelinating Polyenuropathy (CIDP) is often considered the slower onset version of Guillain Barre, sometimes with a more subacute onset the two may be hard to distinguish:

http://neuromuscular.wustl.edu/antib...html#cidpacute

There is also a variation: "acute small fiber neuropathy" that confines itself to sensory symptoms--even rarer than "classic" Guillain Barre" (it has been speculated this is what I may have experienced:

http://neuromuscular.wustl.edu/senso...html#sfpnacute

[QUOTE=glenntaj;1112569]http://neuromuscular.wustl.edu/antibody/gbs.htm

There are differing presentations of Guillain Barre syndrome, and a number can start out with sensory symptoms and then progress to motor ones. There are also vary degrees of severity in a Guillain Barre "attack"--some do not progress to paralysis.

Moreover, as Chronic Inflammatory Demyelinating Polyenuropathy (CIDP) is often considered the slower onset version of Guillain Barre, sometimes with a more subacute onset the two may be hard to distinguish:

http://neuromuscular.wustl.edu/antib...html#cidpacute

There is also a variation: "acute small fiber neuropathy" that confines itself to sensory symptoms--even rarer than "classic" Guillain Barre" (it has been speculated this is what I may have experienced:

http://neuromuscular.wustl.edu/senso...html#sfpnacute[/QUOTE


Wow so it can still happen. It's just
Very slow at doing so. Least I no you can get help for it. I'm going to ask to get tested for it because I do have some of the symptoms of it. And it doesn't hurt .. I'm just thankful healthcare is covered here but now it's time to find a dr that will help me..
Glentaj re u still experiencing all the issue that many years ago?

Alberta, you need to understand something. Most PNs are chronic and long lasting. I've had mine since I was 30 and I am now 68. At my age now my arthritis is far more disabling than the PN. Much of my PN was due to hypothyroidism initially.

Not many people progress dramatically. The hereditary ones (Charcot Marie Tooth) are the worst IMO.

Testing for GBS is not very accurate and may include a spinal tap. In the end it is a doctor's opinion whether you have it or not, based on your symptom presentation.

When people get stressed and anxious, there can be changes in the acid/base content of the blood. This is the pH changes.
The body buffers acids and bases to keep them in a 7 neutral range, but hyperventilating or consuming lots of bicarbonate can cause changes in the blood and this results in paresthesias.,
like the tingling you experience. These may come and go and depend on your blood chemistries at various times. These paresthesias may not be real PN but just mimic it.

Keeping calm, avoiding hyperventilating during anxiety, therefore is very important to stabilizing things. Knowledge is power and learning about how your nerves work, and how your body heals is what I try to share with posters here so they can learn and reduce fear and anxiety and therefore become more
in control.

So make sure you read the links I share here. You may have to read them more than once. Do a little bit each day. Doctors will never help you this way...they keep their secrets as a power thing. You will learn that many times doctors will do more grief than you started with. So it is important to do the learning curve so you can choose whether to do a specific invasive test or treatment or not.

I'm trying to learn as much as possible and I thank you guys so much for help me with this.. Because drs hasn't. They are investigating. I just wanna no that I'll be okay.. And learn no more about this problem.. Iam having a hard time
Understanding ..

Come to think of it. Which I found very weird was my need to urinate more ore get to the bathroom faster . I notice that with transverse myelitis .... I rebooked at some links. Interesting. And same with my blurred eye. I will ring up the dr on Monday and mention it.

Is it possible that I could stay in touch with you guys some how?

tingling
 

I also had shots 3 weeks ago and I didn't even need them I was in a phobia delusion and doctor didn't ask no questions he just shot me up now my arms feel broke and constant tingle my muscles ache and fatigue is horrible so ur not alone im not sure if I will ever feel same my mind don't seem to b on all cylinders like u said in a fog and nurse told me children gets these all time and never have issues WHAT A BUNCH OF CRAP:(

It's horrible. It's been a journey the last few months. I often wonder if my life will ever be the same again. i now have spots that feel like they freeze and half numbness in my legs and Arms. Also twitching and jerking of body parts . Iseen an internist that was no helps that just said something is attacking the nervous system or immune system. I'm
Waiting to see a neurologist and to have a nerve conduction test. I'll never have another vaccine again. Have you seen a dr about these yet and do you find it gets worse?

update
 

I no its been a while did ur symptoms ever go away I got vaccine 4 weeks ago the pain and tingling in arms are horrible just wandering if it goes away or do I need to walk in traffic

I've had this problem starting from sept 20 , 2014, i still have the problem.
Plus half numbness and twitxhing and jerking , wish started
I'm dec. and they think it might be a
Sensory neuropathy, I'm pretty depressed about this. It doesn't seem to be getting better. And I have more numnness on my left side. .
I'm waiting for a nerve conduction test to be done and to see a
Neurologist . I seen a internist already. But he wasn't much help. But he didn't say he thought it was a mild sensory neuropathy , that may get better or worse.

How are u feeling

Hello,
I am 26yo male in good physical condition.
This is my story in short: In December I traveled Thailand for a month, had to get a rabies shots (5) there (just a precaution). Nevertheless since then I am experiencing heavy hands (left more), tingling in limbs, lot of the nights I wake up with numb hand or the whole arm (left or right).
My neurologist said to take magnesium and sent me to EMG of my hands. EMG was ok, no neuropathy, nerves are fine.
These feelings are less common now but they emerge here and there. Sometimes I also feel tightness in the left side of my face and around the temple the skin seems a bit less sensitive.
I am feering things like MS...

Welcome oblivionrpg. :Tip-Hat:

I have read several stories like yours both on this forum and on other websites. The one positive thing is that I've seen is that some people have their symptoms get better after several months to a year. Try to search some of the old threads on this forum.

There are some that has gotten better. Some of my symtoms have seemed to disapeared but new ones have shown up and gotten better or come and go. I had an emg done on all limbs and everything come back clean for me except for pinched nerve in one arm and carpel tunnel in the other. The dr knows there is somthing wrong but not sure what. I've had aN mri of my head and it
Come back good. They want an mri of my neck now and not sure if they want to rescan my head again. To look for ms. I have my on my right shin. Almost like cramping a lot now. And maybe pain in the joint still in my thumb. It's very bothersome . But I've been dealing with this for 8 months now. I've
Stressed less about this now, then this first happened. I have scsred. Not so much now. I still notice my left side is more numb then my right and I noticed
I still twitch and jerk thru out the day too .. I also take viatmins . I don't think they help .

Oh man, that is so like me. Right now, I am sitting in front of my pc and muscles in my right leg are twitching a bit and the leg is a tense a bit. Also my fingers are a bit clumsier and rigid I would say. It comes and goes. When I had the rabies shot it was so stressfull time. I was constantly thinking if I have rabies and if the shots will save me. I think that this kind of psychological trauma is more harmfull to the CNS and whole body than any kind of shot...

I was in your boat as well.

I had a flare back from Oct - Dec 2014.

Just the other day I started back again but so far it's been mild.

Every flare has seem to lessen in length and intensity so that's good news. ;)

Hope you get a bit better soon, or dr might find out what's wrong first. I don't have much hope with the drs though, they think I'm crazy for blaming the vaccine. But I was fine before this..

Do you find your symtoms qorse at night or during the day ? I find when I relax so whenever I get a chance to or at bed time. It's
Worse for me.

It really depends. But I would say it stays the same during the day. Just this nagging feeling.. And tonight I woke up again with tingling in my hand. At first I thout I just laid too long on it but when I shook it, my other hand and my leg started tingling too.. My body is doing what it wants it seems...

I had some crazy stuff happen in the first few months.

There was a few weeks where I was wearing wrist supports 24/7 as well as soft elbow supports to bed to lessen my hands falling asleep. I really looked like a freak. :rolleyes:

It was like another day another symptom...i felt like my body was shutting down.

As long as your syptoms are moving around your body and there is no weakness don't worry.

Also not perceived weakness... actual weakness like stumbling or can't hold your keys.

After having an EMG and my neuro stating in her notes that it was due to anxiety I quit going to the doctor.

Like I said you won't heal overnight.... It will take sometime.

I am much better than I was about 2 years ago... Plus the flares of symptoms have come less pronounced.

I am almost 100% physically back to normal though... Playing basketball, walking and lighting weights with no pain or issues.

Also the deep depression I was in for 4-6 months when this all happened in 2013 has lifted and I am back to my old self.

You will heal... Again it won't be overnight.

Would you say you are getting better overall?

I wouldn't retest for MS unless your Dr thinks it is necessary because of the contrast/heavy metal.

From what I have read it's doubtful you have MS because it doesn't seem to follow what you are describing.

Unless your symptoms stay in one area or you are having visual or balance issues I would not worry about MS.

There are over 15 million Americans with some form of peripheral neuropathy... I am guessing that number is low because most folks just live with it.

The dr wanted to retest for ms again, but I think she is waiting for the lady that did the emg to send the letter to her . She didn't find any neuropathy when doing the emg. But i no that small fiber neuropathy doesn't usally show on an emg and somtimes it takes 3
Years or more to figure it all out from what I read about other people expeirance. The emg lady wants to do an mri on my neck but that only does the top half of the body. Not sure why not the rest of the back. My timgling is everywhere and that comes and goes at times

I find myself getting better somedayz but then other days. I'm back to square
One. The twitxhing and jerking is still around. Somdays I don't have many symtoms and feel good.

Do you notice your symtoms are the same or do you get new ones,? And do you still have the twitxhing and jerking?!

For me it travels all around. Any limb at any time. Right now my abs are twitching and there is slight weakness in my right tigh. But my weakness is just perceived. No keys dropping or trouble standing up or anything like that.
What I have noticed with my hands is that the big nerve (ulnar?) under the biceps hurts when I extend/strain the hand and put palm perpendicular to the arm (like Neo stopping the bullets if you know what I mean :)). Also I had a few hour long pain inside my elbow. I think it must be connected to the nerve system but the EMG was perfectly fine according to the doctor.
Worst is that nobody takes me seriously any more. My GF says not to think about it, that I am hypochondriac, but it is kind of hard. But you know how it is....

Yep same here.

Moves around and EMG was fine.

My wife was supportive but through that and the depression I know she got tired of hearing about it.

I ended up starting a body journal about what I did and ate, exercised plus documented any issues throughout the day.

It was somewhat therapeutic documenting what was going on, for finding patterns and helped with Dr Office visits.

Outside of my wife people knew I was unwell because I lost weight (depression) and withdrew from social interactions but I didn't share it with any friends and family.

I did see a counselor which helped talk through some of it.

Anyway you sound like you went through the same thing I did.

Keep your chin up, I am convinced you will get better. :)

No I got new ones in the first 4-6 months.

Literally was wondering what else was going to happen on a daily basis.

I again would recommend staying away from an MRI with contrast.

Wgphat I have learned through this is to stay away from pills, vaccines and Drs unless necessary.

From what you are saying you don't sound like MS at all.

I was worried about MS at the beginning too but my Neuro told me I don't have it when she did an EMG and physical exam. She said an MRI would be a waste at that point.

Even though she thought I was a hypochondriac which helped me dismiss what she was saying I am convinced she nailed that on the head.

My fear of MS has faded to almost nill the more I read about symptoms and how it presents itself.

Unilaterally, one area and normally with balance and/or vision issues on the first flare.

Hang in there! Remember what I said before... Measure your progress in years and months and not days.

No contrast in mri: just a regular mri . Lol .I'm less stressed about this, then when it first happened . I still do everything I have did before . I had my emg and the lady looked at me like I was crazy, when I said i down hill ski and she was like this? And I said yes. Lol I said I don't have weakness , but everything else. Do you guys feel like ur wearing somthing on ur shins and lower arms as
Well?

Is that the nerve near the funny bone? When I had the nerve conduction test 2 months ago , I had a pinched nerve with a nerve by the funny bone. And then carpel tunnel on the right hand. Funny thing is. I wonder if this is all connected to these problems? Some of my fingers were sore when pilling back. And same with my left leg, for a long time. My toe and couple other toes, something hurt when stretched?

Just curious, did you guys have a nerve conduction test or the emg where they stick the needle in ur muscle?