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Old 10-23-2012, 09:20 PM #31
Susanne C. Susanne C. is offline
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Location: Mid-Atlantic coast
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Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by RonJ View Post
No, nothing. Actually, in her report she stated that she suspects CMT, I suppose because she could not find an actual cause from the workup she did, but she did not make a definitive diagnosis.

Although I understand your preference for certainty, until I am convinced that my neuropathy is CMT, I plan to continue to search for treatments which could possibly bring me long term relief.

This may be unduly optimistic, but I am not quite ready to accept a CMT diagnosis.
Not at all, in the absence of any other factors I think you are doing the prudent thing. My markers overwhelmingly pointed to CMT, and in fact my eldest son has it as well.
Good luck. You will benefit most fom the nutrition and supplement info here. Read everything.
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RonJ (10-24-2012)
 


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