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Old 10-28-2012, 04:17 PM #1
tinaanne tinaanne is offline
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Default Burning now everywhere???

You would think after 12 years I wouldn't have any more questions -- but lately my small fiber PN burning pain is also in my inner thighs and inner upper arms as well as the feet and hands. I am in a flare right now and have had a lot of stress lately, and it seems like the last couple of years when it is really bad it is so bad in these new places. I have been through days when I can't wear shoes, or use bed sheets -- and have gotten used to wearing very very soft baggy clothes for comfort. Anyone else dealing with burning pain in these areas?
Oh, I am diagnosed with glucose intolerance and I am taking Lyrica as well as Oxy for the pain. As well as taking handfuls of vitamins and getting B12 shots weekly. (even though my B12 is fine) I eat very little glutton and sugar - except when I am so very down that I can't seem to control myself what can I say - you understand.
Anyone dealing with pain in other places as time goes on?
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Old 10-28-2012, 06:26 PM #2
Susanne C. Susanne C. is offline
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Quote:
Originally Posted by Tinaanne56 View Post
You would think after 12 years I wouldn't have any more questions -- but lately my small fiber PN burning pain is also in my inner thighs and inner upper arms as well as the feet and hands. I am in a flare right now and have had a lot of stress lately, and it seems like the last couple of years when it is really bad it is so bad in these new places. I have been through days when I can't wear shoes, or use bed sheets -- and have gotten used to wearing very very soft baggy clothes for comfort. Anyone else dealing with burning pain in these areas?
Oh, I am diagnosed with glucose intolerance and I am taking Lyrica as well as Oxy for the pain. As well as taking handfuls of vitamins and getting B12 shots weekly. (even though my B12 is fine) I eat very little glutton and sugar - except when I am so very down that I can't seem to control myself what can I say - you understand.
Anyone dealing with pain in other places as time goes on?
Mine is hereditary neuropathy, but I did go through a period much as you describe for a month or so this spring. It largely subsided, but I did not think I would ever wear jeans again. I am more sensitive than before the attack, but nothing like as bad as it was, so perhaps you will improve. I have no idea what caused it.
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Old 10-28-2012, 08:51 PM #3
Stacy2012 Stacy2012 is offline
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Im so sorry for your pain.

I thought with glucose intolerance, once you eliminated it (or get it under control) the PN gets better?????
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Old 10-28-2012, 09:40 PM #4
tinaanne tinaanne is offline
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Im so sorry for your pain.

I thought with glucose intolerance, once you eliminated it (or get it under control) the PN gets better?????
Thanks friends - yes, my pain in general has gotten better since I have changed my eating. But stress sure is my enemy - going through this tough time stirs everything up and I have noticed the last year or so when I am going though a flare up the pain is also in my inner thighs and inner arms as well as the hands and feet.
So yes, eating different has helped, but certainly not made it go away.
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Old 10-28-2012, 11:32 PM #5
Stacy2012 Stacy2012 is offline
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Stress has a way of making everything worse.

Have you tried Benfotiamine? It has been a miracle for my burning, even in flare ups I just take more of it and it is amazing for me, though I know not everyone is the same.

goodluck
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Old 10-29-2012, 12:20 PM #6
tinaanne tinaanne is offline
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Originally Posted by Stacy2012 View Post
Stress has a way of making everything worse.

Have you tried Benfotiamine? It has been a miracle for my burning, even in flare ups I just take more of it and it is amazing for me, though I know not everyone is the same.

goodluck
Stacy - wow, I just looked up Benfotiamine (I had never heard of it) and it sounds like something that might really help me. I will give it a try! Is it one of those things that has to build up in your system or is it like an asprin that works as you take it?
Thanks for the help and understanding - I'm doing a bit better today
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