Hi
I was diagnosed about a year ago with PN. I am still fully functional (able to walk, work etc) but I am concerned about the day I won't be. I have three kids and I am the primary provider. I currently have LTD with my employer but I am getting ready to change jobs. My new employer will not offer benefits and I will need to purchase them on my own. I am wondering whether I can continue my existing coverage on my own or whether I can purchase an individual plan on my own which won't break the bank. I am obviously very concerned about not being able to support my family as this progresses and I am hoping that somehow current insurance laws will aid me in continuing my existing policy as I change jobs or enable me to get a new policy given the fact that I have purchased LTD through my employers for many years and long before my PN diagnosis.
Any thoughts or experience would be appreciated.

I don't have an answer, but I worry about the same thing as well. I am the primary income provider and I know my husband wouldn't ever be able to make the money I do. The docs won't tell me (or can't) how bad this will get. Worse, better in a few years, worse before it gets better, whatever. Mine is from a burn, and my lawsuit will cover the costs, but that's a big part of what I'm suing for - what could happen if the neuropathy takes over completely. And even if meds can help, they make me stupid and I know it's affecting my work already.

I'd love to hear about other's experiences in how their path down the PN road went. How bad will it get and how soon? What did you do to keep working? How long did you work until you had to go on disability? Or did you change jobs?

I kind of wonder if I will end up working for myself in some way. That way I can set my hours, maybe sell stuff online (art quality photography or crafty items).

Regarding the long term disability, can one still get it after they have PN (as well as other issues)?