Do you have swelling ever? My feet get red hot also but they also swell sometimes which is concerning and I plan to ask my doctor about it.

A young person with swelling ankles is not a good sign.

PN doesn't really do this to everyone equally.

There are other medical things that cause swelling ankles.
So those should be looked into.

Kidney, heart, and thyroid are the big culprits for this. As are various circulation problems like autoimmune conditions.

Cutting back on carbs will also reduce fluid retention, as carbs seem to hold water in the tissues for some reason.

It's only my feet and toes that swell. So far I don't have any ankle swelling.

My toes look fat and stubby all the time, so I don't no, lol.

I don't think so. Plus I am on a blood pressure pill that is a water pill so I doubt I have any swelling on my toes, but like I said, they are short fat and stubby lol

Okay sorry that was funny. Mine are too, but they actually swell. There is a noticable difference. One more thing to think about I guess. Well I just went for a walk with my son. I made it! Only about 15 minutes but I didn't fall. I am always so afraid I'm going to fall over since my heels go numb. Not too much swelling. I think my anxiety gets the best of me at times and makes this situation way worse than it needs to be.

Well join the young/old lady club...I always link my arm onto my husbands or sons arm when i am walking now. They are all over 6 feet so it works, but I call it the old lady walk now. lol My precious twin sons (age 20) automatically put out their arm when they walk near me.

That's sweet! It's nice to have people who are there for you. It's priceless. Thanks for all your input it's been nice talking to you all because I have been dealing with this on my own for over a year. My husband knows of it, but he totally can't relate and he works so much I'm left to take care of my 2 year old by myself a lot which keeps me going but at the same time it gets me down, if that makes sense.

When my PN symptoms started, I did not realize that my pain then was just a "preview" of what to come. Anyway, there are other health issues that developed after the PN diagnosis that requires more frequent doctor's visits, more toxic medications, that I sort of grudgingly accepted the PN pain while shifting my focus to the other health condition. All this time, I continue to exercise not only for my nerves but more so for my lungs.

My question to those who regularly exercise inspite of the pain, if you can tolerate the "intolerable pain" and you continue to exercise (because for me, not exercising is not an option for my lungs), will I further damage my nerves?
My exercises are:

1. treadmill (incline of 7 and speed of 3) - when the pain is tolerable;
2. walking outdoor - when pain is moderate

Now that my feet and legs are REALLY hurting, I still want to do teh walking even slowly. I probably can still do it but I am concerned that my pain must be telling me to rest for a while or forcing to walk while the pain level is high might damage some nerves. Will recumbent bicycle be safe?

Swimming or water exercises (in a pool) is not for me. The splashes could create an "aerosolized water" that can potentially carry a bacteria which I can inhale. (My apologies for some who might think I am insensitive to those who love pools. I could not just take the risk of being exposed to bacteria or virus especially that my WBC and Neutrophils are too low.)

Will appreciate insights.