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Old 01-10-2013, 02:51 PM #9
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Marie33 Marie33 is offline
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Marie33 Marie33 is offline
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Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
10 yr Member
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Quote:
Originally Posted by JohnLemon View Post
About six months ago I went to the doctors because of pain in my legs and hands. I found out I was diabetic and that I had Neuropathy. I have been on a bunch of different medications to help with the pain they have all either offered minor relief or none at all.

Neurontin - No Relief
Cymbalta - No Relief
Lyrica - Minor Relief
Elavil - No Relief


As time has gone on things have actually become worse a burning feeling on my feet/legs/hands/arms and actually pretty much any where if something is rubbed up against it.

After seeing my neurologist and trying these medications he is rather sure that the Neuropathy is not caused by my diabetes. I am to have a Cervical MRI next week. He is hoping he can do something to lower my pain levels until I am able to see nerve disease specialist.

I am wondering if anyone else has had similar issues with these medications not helping and what they have done.

And any other input would be greatly appreciated.
Hi John, I started taking 50mgs of Lyrica 10 days ago for small nerve (idiotic) neuropathy. (they still cant find a cause, even though I am considered "prediabetic", a1c was 5.7 when this all started back in 3/11.) Im having alot of the same symptoms your having and some... So far I have gained 5 lbs on lyrica in only 9 days. Other then weight gain (lucky for me Im thin), side effects have not been to bad. but I am on a very low dose. I have been reading about lyrica side effects, and nasty withdrawal side effects..this is scaring me to a point where Im considering stopping the lyrica instead of increaing it. So far it hasnt done anything for my pain. How long did you take lyrica and how much were you taking when you decided to stop it.? Did you have withdrawal symptoms?
I also tryed Cymbalta one 30mg dose , it was horrible and neurotin caused panic attacks. had to stop at just 100mg a day after 4 days.
Also, why does your neurologist want you to see a "nerve specialist", How is he diff from a neurologist? My neuropathy was dx with a skin punch biopsy. All other tests including Bldwrk, EMG, NCS came back normal..I feel the need to go for another opinion for more testng, Im having a difficult time accepting its idiopathic..Good luck to you!
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