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03-16-2013, 09:42 AM
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Grand Magnate
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DNA blood testing might be in order. However, it is very expensive. The testing might be able to help identify which type of peripheral neuropathy you have. There are many types. Just a thought.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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03-16-2013, 06:14 PM
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Member
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Hmm. I wonder if that's covered here in Canada. Most testing is. Thanks for the info. I will keep plugging away and pestering my doctors for more testing, because who knows how much worse this will get without proper treatment.
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| "Thanks for this!" says: | Kitt (03-16-2013) |
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03-16-2013, 06:32 PM
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Grand Magnate
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If it's an inherited peripheral neuropathy there would be no cure/treatment. It would be nice for you to know exactly what it is you are dealing with. I hope you get an answer.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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| "Thanks for this!" says: | lined_in_silver (03-17-2013) |
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03-19-2013, 04:22 PM
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I have a nagging feeling that my past medications have something to do with it.
In particular -macrobid and clonazepam If that's what is was, then I will stop the clonazepam and hope my nerves regenerate in time |
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03-19-2013, 04:32 PM
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Wisest Elder Ever
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Just a reminder:
You cannot stop Benzos quickly...they have to be tapered very slowly. Clonazepam has a very long half life in the body, so consult the withdrawal sites for ideas about how slowly to taper. It may take months to do so successfully, and expect symptoms to escalate at times as well. Klonopin comes in various dosage sizes than lend well to a slow taper. A generic may not. Quote:
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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03-19-2013, 05:57 PM
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#6 | ||
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Grand Magnate
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Macrobid has a moderate to a significant risk for a person with CMT.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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03-20-2013, 04:12 PM
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Member
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Wow, so I just finally had a few minutes to look up CMT..and it sounds exactly like me.
the neurologist JUST pointed out my high arches too. Do you think that unusually low creatinine can be a sign of muscle wasting ?? My arms and hands are very weak and painful. However, my whole body is affeted, remember. It started with the nerves of my bladder spasming and then burning down my thighs with pelvic pain. I just want an answer . 
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