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Old 04-20-2013, 10:19 AM #1
lined_in_silver lined_in_silver is offline
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Default neuropathy involving gut pain!??

Hey guys..depressing old me again..

Every single day I have burning inside my stomach/guts..like ulcers everywhere ..I haven't noticed if it flares when I eat..but I think its pretty constant unless the meds are doing their job.

Anyway does anyone else have burning in their "guts"?
Its awful. I tried antacids just in case ..didn't do anything. So I have to assume its part of the PN

Thanks friends. Have a nice weekend.
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Old 04-22-2013, 11:12 AM #2
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Yep, I have it. I think it's gastroparesis, but nobody has confirmed that yet. My GP has me taking zoloft to help with the actual pain/nausea, which is actually helping. I can't eat much at once (like half a sandwich sometimes), being too full is very uncomfortable. I eat about half of what a normal person would eat. I drink a lot of soda (3-4 a day) and it seems to fend off my hunger. I started to become a soda addict with migraines, as the caffeine helps them. I shouldn't be drinking them at all. I've read that liquidy stuff is good for this issue as it goes through your body easier. There isn't any particular food that makes it better or worse, for me. If I don't get enough sleep it hurts more. I do not have IBS nor ulcers. I thought for a while I did have ulcers or something causing it, but the zoloft totally helped, so I guess not, thankfully. Something like Tums didn't help at all either.

Hopefully somebody has a better answer for both of us. I'd love to get more info.
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Old 04-22-2013, 09:50 PM #3
lined_in_silver lined_in_silver is offline
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Hmm, interesting. I'm sorry that you are suffering.
It doesn't sound like what I experience though..no nausea or inability to eat a lot.
Just burning inside my stomach. The same burning that I feel in other parts of my body affected by neuropathy.
I have never done well with anti depressants, but I'm happy that zoloft helps you.

And yes, soda is horrible for your health
When you find a better solution, I'm sure you will switch over.
I smoke ciggys, so I'm not one to talk!
Tomorrow I'll try to note if it is worse when I eat. That could be an important clue.
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Old 04-24-2013, 03:53 PM #4
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Hi Featherbullet,

I found these boards when I was struggling for a diagnosis, any diagnosis, for my issues. I felt alone even here because I didn't have the tingling or burning. Just pain. My general practicioner decided my diagnosis was idiopathic PN of the large intestine. I went through an endoscopy - they found h.pylori but that didn't clear the pain. I went through a colonoscopy where they found pre-cancerous polyps. A 2nd colonoscopy confirmed they got them all. Then I had an exploratory laproscopy looking for endometriosis, where they didn't find any - but did remove my appendix. Again no change in pain level. They referred me to another surgeon, who refused to listen to my experience. So I halted all treatment, which kept me house bound, and mostly bed ridden, curled in a ball.
My pain is in the lower left quadrant of my abdomen. Exactly where the appendix would be, but on the other side. The Cymbalta was prescribed and finally I could have good days again. I only took it for a month and then figured out how to better manage my symptoms. I cut out all fried foods and most meat products. I eat meat about once a month now, and definately never anything fried or overly greasy. I can minimize my flairs in my intestines.
Now, after 2 years of healthy management... Now I get the tingling, the numbness, the weakness, and the pain in my hands and feet.
I don't think our stomach pains are similar, but I wanted to let you know there are others out there. That someone does know your frusteration, and depression when new symptoms pop up just when you were managing the others. I know we've spoke before and you can't do the Cymbalta, but I hope you get some relief from your new symptom or concern.
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Old 07-30-2013, 09:07 AM #5
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Default the pain persists...

Hey guys, I am still hanging around..
I just wanted to revive this thread, in case anyone else has info they would like to ad.
It seems that I should have a procedure to look inside my stomach-but do I need a gastroenterologist referral to book this? If I do, that will take nearly a year.
The razor blade feeling still persists. I wonder if this is gluten related, or gastroperesis?
I can't eat a lot at once or else I get very bloated. But that doesn't explain the pain.
All I can do is take pain meds. Perhaps its time to try an anti depressant again. I do have a prescription for zoloft. My doc says it is the most studied ssri and has the best results.
I am hesitant, because I have tried SO many-and they make me quite I'll or don't work at all.
I have a personality disorder, and I think that complicates things.
I also wonder if it is safe to take with lyrica, and narcotics.
It would just be masking the problem as well.
I don't have any upcoming appointments, so I'm feeling discouraged. I find a heating pad is helpful, but not always convenient.
Maybe I will try my marshmallow root capsules again-to sooth mucus membranes.
Any advice? Thank you !!

Silver
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Old 07-30-2013, 09:46 AM #6
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hi lined in silver.
I think with the kind og gastro symptoms you are mentioning, you should have a consult with a gastroenterologist. And yes, you probably do need a referral, all depending on your insuranse. I have a open acess insurance, so I do not need referral. But you live in Canada, do you not? So then, yes in your healthcare system you need a referral.

You might need to be tested for autonomic neuropathy and this could be the reason for GI fullness. and burning.

You might need a test called Gastric Emptying study to rule out gastrophoresis. If you have this, you might have to be on small frequent meals, and on a Acid reducer such as Protonix.
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Old 07-30-2013, 03:32 PM #7
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Hi! Thanks for the quick response !
I will ask the next doc I see for a referral-but am already bummed, knowing it will take soooooo long. I don't have insurance, just OHIP which every Ontarian has.
I've been considering going to the states and paying out of pocket to speed things up-but don't have any money saved.

I do currently always eat small meals, and have an over the counter acid reducer in my medicine cabinet. I wonder if I should try it just for fun and see if things improve.
I'm not understanding exactly how the burning happens, if it was autonomic.
I also gave the burning bladder, remember. It comes and goes thankfully. I bet coffee is no good for either symptom.

Thanks again. You've been so helpful
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Old 07-30-2013, 03:57 PM #8
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you realy need a gastroenterologist to see if you have acid reflux disease.
To treat this, the best is to fallow a blanf diet, with small frequent meals. The Acid reducer meds I am talking about some times takes up to 6 weeks to really have effect. The best one is Protonix, but this one needs prescription. Prilosec, is similar and over the counter med.
But you realy should not experiment, best to see a doctor, to get a diagnosis.
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Old 07-30-2013, 05:09 PM #9
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I was taught in school that suppressing stomach acid hinders your bodies ability to break down food, as well as absorb important nutrients. The whole idea makes me uneasy.

I don't really get heartburn ..
An easy way to tell is by doing the apple cider vinegar test-if anyone is interested in doing a quick search.
Thanks
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Old 07-30-2013, 07:46 PM #10
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Yes, lined in silver, that is so true. Acid reducing meds are to be used only for short time, that is due to the same fact you are mentioning, if coulod prevent certain nutriens to be absorbed in the stomac. That is the reason we have stomac acid, to aid in absorption.
So therefor, during times when a person have severe gastric pain in form of a gastric ulcer, or severe acid reflux, the doctor might prescribe this for short term, to relieve the strain of pain, and to heal the stomac. If the stomac has too much gastric acid, it can produce a gastric ulcer. A gastric ulcer will cause severe gastric pain, like burning you desribed, that only can heal by rest, small frequent meals of a bland diet, and possible a acid reducing med until the sore heals. The sooner it heals, the sooner the acid reducing med can be stopped.
If a person has acid reflux,( sometimes a person does not feel it as a heart burn) the doctor has to find out the reason for the reflux. For a person saying they may have autonomic neuropathy with severe gastric/stomac pain, this could be caused by acid reflux due to the fact that the stomac is not emptying, and squeezing the acid up in esaphagus sometimes causing a pain in the whole chest area.
Sometimes gastric disorders can be caused by stress and it can cause this kind of problems.
For gastric/stomac lining pain like "pain in the gutt". as you discribed it, this is often the first reason one comes to think of. So healing it first.

I would ask the doctor before experimenting with different kind of pain medication before you know what your stomac pain is coming from.
I would stay away from narcotics.
And yes, to answer you on your post, acid reducer meds are recomended only short term, until problem heals,
Good luck
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