Originally Posted by TLSMITH

I have been diagnosed with muscular pain fasiciculation syndrome also. I was diagnosed at Emory University. I have cramps and painful muscles. My father and several of his uncles have become crippled in their fifties along with two cousins of his. Thier grandfather was also crippled. I began having muscle problems in my mid forties and have the same beginning symptoms as them. The legs eventually become mostly paralyzed. I have been unable to work for the last three years and am pursuing SSDI on the advice of my neurologist. My neurologist just says I have a unknown neuromuscular disorder probably familial. He sent me to Emory and they diagnosed me with the mpfs and said that it wasn't hereditary. I think maybe the mpfs is just part of my problem.

My main symptoms are that I get extremely sore with almost any activity. My muscles cramp easily and even holding the steering wheel or a computer mouse hurts. I also get stiff as a board especially in my legs.

I do have a lot of fasics but they really don't bother me. The Dr. at Emory tested one calf muscle and then diagnosed me with that. When I told him about the stiffness he said you don't look stiff to me. I have six male family members with the same symptoms as mine but he said mine was not familial.
I also was tested at the medical college of georgia but they only came up with a inherited muscular disorder unspecified. So yes I have been diagnosed with it but I really am not sure what to think about it.