Thank you all for your kind posts/comments.

Just an update on where I am with PN now --- I tried weaning off very very slowly. I started reducing my dosage by 100mg during breakfast for about 3'weeks. Unfortunately, I had to go back to the original dosage. The symptoms became more intense.

My pain has graduated to a new level. Just over 2 months ago, I had some "tolerable days". I had some windows of tolerable moments during the day, but now, it seems that the pain is getting worse. I dont think this new level of pain is a result of weaning...I am sure it is just a co-incidence. I dont think that it is due to any food or activity. I am basically doing the same thing and eating same food.

Mary

Mary, if I may ask, what kind of diet are you on?

Are you also taking vitamins/supplements?

Joe Duffer,

Thank you for your interest.

My diet is essentially healthy. "essentially" because i sometimes eat hamburger or pork, but this is at least 2x a month. Other than that, I eat healthy. That makes me frustrated because I dont abuse myself but my sugar has been erratic. Maybe, as Mrs D said, it could be my age.

I take a lot of supplements which I found in this forum.

Im sorry for your pain.

This post is scary. My mom asked me why don't I get on pain meds. and my answer was addictive and dependence once I start and this post confirms that. I guess eventually one day I may have to give in to pain meds but that wont be until I have to. Like you said, the thought of taking it the rest of my life when I am only 45 scares me.

This whole thing scares me. Our lives revolve around dealing with our pn and I wonder what my life will be like in even 5 or 10 years, but mostly I try NOT to think about it.

I wish for you pain free days.

Hi All,
My feet get tingling and very peculiar, hard to describe symptoms. It feels like I have another sole to my feet which doesn't seem part of my own feet. The souls of my feet are awfully dry! When I touch my feet they don't have hard skin but when my feet touch each other they feel so rough that I cannot allow my feet to touch each other at all. All this makes having a good nights sleep really difficult. Please, please help! Anyone! Any suggestions?
Really grateful for your thoughts.
Thanks

Welcome to NeuroTalk:

With your doctor's permission, I'd ask you to start with a quality fish oil product. This can help with dry skin. Ask your doctor for dosing, since in your profile you list kidney failure.

Poor intake of essential fatty acids can lead to very dry skin.

I was given the lowest dose a couple months ago but never used it. Last week I decided to experiment during a flair up. I took it 2 nights in a row and felt a little off. The second morning I took another pill and I was loopy and slightly groggy. I did not feel any benefits so I stopped.

Everyone is different. I had a contractor do some work last week. He has diabetic neuropathy. He said his doctor gave him a little pill that he takes twice a day and bingo, no more symptoms. Turned out it was lyraca. He said, stop looking for a cure just cover up the symptoms. That's why I took tha gabapentin.

I hate to admit it but I think he's basically right. For most of us