Thank you all for your kind posts/comments.

Just an update on where I am with PN now --- I tried weaning off very very slowly. I started reducing my dosage by 100mg during breakfast for about 3'weeks. Unfortunately, I had to go back to the original dosage. The symptoms became more intense.

My pain has graduated to a new level. Just over 2 months ago, I had some "tolerable days". I had some windows of tolerable moments during the day, but now, it seems that the pain is getting worse. I dont think this new level of pain is a result of weaning...I am sure it is just a co-incidence. I dont think that it is due to any food or activity. I am basically doing the same thing and eating same food.

Mary