jolting, jarring at times, but not really excruciatingly painful. of course everyone is different. the nutcracker or lobster squeezing the joint of my big toes from tiume to time is pretty excruciating.

Samrose,

Is it possible the shocks seemed more painful initially due to the surprise/unexpectedness, and then (if applicable) because of anxiety/apprehension/fear? No question they can be... um... rude, but after a few times & knowing what to expect, the fear/surprise of the unknown has lessened and they've sorta fallen into perspective (for me, anyway... ) Like Ech sez, everyone's different...

Doc

Sometimes my electrical jolts can be very painful. I'm not speaking for echoes but I understand how he says he doesn't pay attention to them.

When I get them I stop what I'm doing, make weird faces, press down on where it is occurring wait for it to subside and move on. I treat most of this disease symptoms this way. We have to keep going.

Dr. Smith is right about fear being more stressful then the symptoms. Our fears can be our own worse enemies at times. Try to relax a little and when the fears come squash as soon as they arrive. I am speaking from experience. Worrying will not bring a solution. Go to the right doctors, come here and get advice, BE YOUR OWN ADVOCATE.

I hope you find your answers!

I am wondering what type of doctors you are seeing and what you have been tested for. Thyroid disease comes to mind for me with you. It can causes neuropathy. It also causes many of the other symptoms you have listed.

My T3 on my blood test was low, but when I asked my new internist about she said she isn't concerned because its TSH they look at, not T3. I don't know what to think about that. My hair has been coming out in cycles since 2011 too so something definitely is not right!

As far as the pain goes. Not possible that it's in my head. It is a horrible pain I wouldn't wish on my worst enemy. Just like you were being shocked by something metal when it's cold, except way more intense and the pain is comparible to being snapped with a rubberband. It's not something you can ignore or pretend didnt happen. You react even against your will.

I'm only in my 20s. I haven't even started a career yet. I've been feeling really a little depressed lately because I don't know if this will keep progressing and control me. I have a couple interviews this week and I even wonder of I should accept a job because I'm scared of what could happen at work one random day. I'm having a really hard time with all of this, including my other neuro symptoms that haven't given me a dx. I don't want a dx of anything, don't get me wrong, but I need some answers.