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Old 09-29-2013, 03:50 AM #11
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With that chronic Doxy use.... there are nutrient depletions with this drug:

A long list to consider:
bowel bacteria disrupted
Biotin
Calcium
Magnesium
Inositol
All the B's
Vit K

A very helpful thing for you to consider is Kefir. This is just so great...you will find it amazing. Lifeway brand is now becoming more common in stores and is not expensive.
It has 12 cultures in it (more than yogurt) and is lactose free.
http://www.lifeway.net/
A friend here on NT suggested it to me, and it really will help with that chronic Doxy use.
4-6 oz a day is all you need. It will help with those feminine issues as well.

Many drugs used for long term issues affect how nutrients are used in the body, absorbed and excreted.
I use the resource Drug Induced Nutrient Depletion Handbook 2nd ed. , which is a collection of Medline papers on this topic.
Unfortunately it is out of print...but this link has some shorthand versions of it:
http://www.chiro.org/nutrition/ABSTR...orticosteroids
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Old 09-29-2013, 08:11 AM #12
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Quote:
Originally Posted by NAS7 View Post
No, I am the only one but I'd like to hear more about CMT. I've had 20+ years of dental reconstruction and the damage was thought to be caused by drymouth from certain meds, drinking too much soda, also.

I hope I am doing this correctly. You all are so kind and make me feel less reticent about talking about this. Only a few family members know so far as not to upset them further with the "Oh, here's a new diagnosis" talk. I have asthma, eczema and rosacea, also. Non-steroid inhaler used for asthma and doxycycline(50 mg) used daily for rosacea. I take Diflucan 2 or 3 times a month to stave off yeast infections (Ah, the glory of being a women )I am also in menopause, so this is a real roller-coaster ride, for lack of a better term! It's a lot to deal with, but I am still here on Earth so I figure I might be doing something right!
Charcot-Marie-Tooth syndrome is the most common "inherited" neuropathy. There are many types of it. It affects the Peripheral Nervous System (PNS). Everything outside of the Central Nervous Sytem (CNS) which affects the brain and spinal cord. Signals cannot get to the muscles and so they atrophy (die). Feet, legs, hands and arms. Some have all of this and others just feet/legs or hands/arms. It is diagnosed via family history, DNA blood testing (very expensive), EMG/NCV testing. A good neurologist who knows CMT should be of help. CMT symptoms vary greatly even within the same family. CMT symptoms can become evident when you are young, old, or in-between. Or they might not ever be that evident. And CMT can be misdiagnosed as polio, Fredrick's Ataxia, etc. It still happens today.

Hope you find an answer but it really does not sound like you have CMT IMHO.

Last edited by Kitt; 09-29-2013 at 12:04 PM.
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Old 10-08-2013, 02:21 AM #13
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Default Extreme dry mouth

I am having a problem with my mouth being extremely dry. Is this a normal part of PN, or could the Vitamin B and D-3 supplements cause this? Some of the meds I take cause dryness in my mouth, but never like this. Thank-You for your help!
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Old 10-08-2013, 06:30 AM #14
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Dry mouth is a sign of an autoimmune problem... called Sjogren's syndrome.

The supplements should not be causing this to worsen.
You can develop blocked salivary glands. You can try massaging corners of your jaw, gently for a minute or two to see if that helps.
My doctor suggested lemon or some sort of sour candy twice a day.

Biotene products are designed for those with dry mouth. So do check them out to see if they might help:
http://www.biotene.com/?google=e_&ro...FeIRMwodBloAJQ
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Old 10-08-2013, 07:17 AM #15
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Sorry for not seeing your previous questions about Sjogren's.

This autoimmune condition does cause dry mouth & eyes, along with joint pain, fatigue, and many neurological symptoms.

Diagnosing Sjogren's can be difficult. I'd be interested in knowing what 'one test' she was talking about as a possibility. Most doctors look for positive ANA, SSA & SSB as indicators of Sjogren's. However, up to 40% of patients with Sjogren's are sero-negative, meaning their blood work markers are negative...yet they still have the condition. There are other tests, like the schirmer's test to measure tear production, spit test, sialogram (measure saliva flow), salivary scintgraphy (salivary function), and lip biopsy (of the salivary glands). The lip biopsy is about the most definitive test.

You should see a good rheumatologist for a full autoimmune work up.

BTW, there are products for dry mouth. Biotene makes several OTC products. The most common (and effective) Rx is Evoxac. Your dentist, or doctor can prescribe this is your symptoms are profound.
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