NeuroTalk Support Groups - Possible Successful treatment for neuropathy!

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- - Possible Successful treatment for neuropathy! (https://www.neurotalk.org/peripheral-neuropathy/195741-successful-treatment-neuropathy.html)

Quote:

Originally Posted by Stacy2012 (Post 1023029)

I have identical twin sons and they both had pectus Carinatum. Carinatum is where the bones protrude out, excavatum is where the bones push in. Carinatum is easier to fix, providing you catch it early enough. You have to treat both of them before the age of 18 while the bones are still flexible.

20 years ago surgery was the ONLY option, and most doctors didn't even bother to treat it, and insurance said it was cosmetic. Things have changed since my boys were little, today there are options, and it is realized that indeed it is more than cosmetic, but much is still unknown to the "modern medical" doctors.

Back 20 years ago bracing was not common. I almost flew my 4th grade boys to Brazil since my research showed limited dr's who believed in bracing over surgery. Thankfully God lead me to a man on the cutting edge of new technology, but my boys were among his first patients. Today he has several locations and is a thriving pectus therapy in New York, New Jersey, and Arizona.

Why did I do it??? Have you seen that gosh awful surgery they want to perform???? They go in and break all the ribs and breast bone to place a bar, close them up, wait 6 months, the do another surgery to take the bar out. N O W A Y. Recovery is AWFUL.

God lead me the correct path, and I am still thankful today. If you heard the whole story you would be amazed. Long story short....2 boys, so double the tests and costs. Because I found this man at the beginning of his trying to get doctors to join him in this therapy, I never paid a dime. 2 kids, means 2 MRI, 2 ekg, 2 stress test, 2 cat scans, list is long. I never got a single bill and thats only part of the story. God is good.

p.s. today they can take their shirt off and you would never know they had it. :)

That is wonderful! They are lucky to have you for a mom!
The surgeries are similar, but for our son they would break the ribs and insert a steel spring contraption which they would have to go back in and expand periodically. The results are not guaranteed and it can revert to the original condition. It is barbaric, but I might have chanced it when he was young if I knew how it would affect his future. He weighs 140 at 6'4" and cannot go without a shirt in public. It is sad, and can be life threatening if he exercises.
The odd thing is, my rib cage is very large, larger than my bust. It is extremely unattractive, which I am past caring about but it was tough when i was younger being over 6' tall, flat chested, and having these ribs. I looked like Jim Carey when he would do the female body builder skit. Our bone structure is so odd as a family.
Thank you for responding. A fascinating story.

I'm very sorry for your son. My boys have seen many friends in the locker rooms at school with pectus. Most go undiagnosed or untreated. Their very best friend has flared ribs which is part of pectus. One of my sons was worse than the other since it was over his heart more, took longer to correct. I don't understand pediatricians that say "its nothing".

It is a very, very, sad thing for a child/adult to live with, especially when young. My heart aches for kids who have it.

I really do hate the medical community. I know I need it, but at times I really hate it. I truly do embrace alternative medicine, in every aspect. I have more stories like the above one, that are amazing. Now I am just waiting for God to show me something for my pn. :winky:

p.s. if you want the name of the place I took my boys for your son send me a private message. He is a good friend of mine, he even flew to my state for a follow up visit years ago. He has a thriving practice. I don't know how much he could help since your son is over 18 but you never know. I believe in miracles. :)

I think I will try this hot/cold therapy. It is natural, and maybe worth a shot to try. I will ask my PCP as well. If I could get rid of this neuropathy and not have to take medications, lotions, patches etc. sounds like it is worth a bit of investigation. ginnie:grouphug:

I have had a doctor recommend alternating hot and cold in the shower - as warm as you can stand it, then as cold as you can manage. Repeat several times back and forth ending with cold. It is supposed to improve your circulation if done every day. Your body pulls blood away from heat and towards cold (or is it the other way around) - at any rate the back and forth motion helps the blood vessels work better.

Quote:

Originally Posted by Stacy2012 (Post 1023011)

Melody, did you make your own or did you buy a machine thingy to make the silver????

Mine is good old fashioned home made and when I say rustic, well..its rustic. Like everything, I go in spurts, I use it awhile then quit, then remember it and use it again. Then I ran out of silver and forgot until today.

I used to buy it years ago. Silver Biotics. Then I did some research and now I use the pure thin silver bars (got them free from a very generous person on the internet who gives you the kit). I use a 9 volt battery. Haven't had a problem. I can't afford the generator but I know others who have the generator.

And about my friend having a sheet break his toe? Yup. I met up with him at our monthly Neuropathy Support Group meeting. He took his shoes off. There was the broken toe. It did happen. That was over a year ago.

We don't have Access a ride now so we can't go to the PN Support Group Meetings. But hopefully the lawyer handling Alan's Article 78 will be updating us soon when the judge hears Alan's case.

He should be reinstated and then we can continue going to the PN Support Group Meetings in NYC.

When I speak to my friend again I'll ask him how his hot and cold thing is doing. It really is a remarkable story.

Mel

Fwiw I do have a steam cabin/sauna. They are wonderful things that make you feel like a million bucks and smell exquisite for days. It even has a cool LED "starry heaven" ceiling.

Sadly I can no longer use it anymore since with the PN it started to hurt like hell. Your mileage may vary. :)

Quote:

Originally Posted by skyfox (Post 1023052)

I have had a doctor recommend alternating hot and cold in the shower - as warm as you can stand it, then as cold as you can manage. Repeat several times back and forth ending with cold.

I go through that every time just trying to get the water the right temperature... :eek:

Doc

I cannot stand that heat.... The sauna at the gym would set off my Lateral Femoral nerve (MP--damage from a C-section many years ago), fairly quickly. I loved to sauna after a work out.

Also hot baths are out for me too. I only use lukewarm water today. Too hot a bath and my feet go off into constant pain for days afterward.

I think people are going to be different with this hot/cold thing. So start off carefully with no extremes or long times doing it.

I do use ice treatments for my back and ankle sometimes. No longer than 20 minutes though. I use an cold gel pack that I keep in the frig freezer. Cold treatments like this are recommended for some arthritis patients, but only if done for short periods of time. Use of cold too long can be dangerous to tissues, if your circulation is poor.
They tend to quench inflammation.

Quote:

Originally Posted by mrsD (Post 1023144)

Hi Mrs D.

Oh I certainly agree with you on the ice thing. Years ago when I had a flare up of sciatica I had to go to this therapist office and they would sit me down and put an ice pack on my lower back. I nearly jumped off the chair. I said "are you crazy?" She said 'No, you have to do this, it's good for the pain". I said "It's hurting me". She said "no you have to do it'. She walked away, I took it off, and after 15 minutes she came back (thinking I had the pack on), I gave her the pack and THEN we did the thing where they put some electrodes on the back, cover it with a hot (I think it was called a hydroculator), it had been boiling in some pot) then they cover that with big towels. They put the timer on. Can't remember how long but I felt the electrodes doing their thing. Then I had to go some physical exercise with weights and pulleys. Then.... they put me on some table with my neck in some holding system and they STRETCHED ME. I don't remember if I liked it or not because this was almost 25 years ago.

I had all kinds of pinched nerves, etc. Blah!! It sucked. I have NEVER liked anything cold on my body ever since.

When I take a shower the bathroom has to be WARM before I even get in the shower. I don't like anything cold.

Could be all in my mind. Who knows??

Melody