NeuroTalk Support Groups - Possible Successful treatment for neuropathy!

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- - Possible Successful treatment for neuropathy! (https://www.neurotalk.org/peripheral-neuropathy/195741-successful-treatment-neuropathy.html)

Funny how one persons misery is anothers fantasy!! LOL Those of us who burn want cold and vice versa.

I miss my hot baths, hot tubs, spa's and everything hot. Even showers are now shorter and less hot. I miss socks. Shoes that cover my whole foot. Ahhh....memories :)

Interesting.

When I had my PT for my tendon injury, they put an ICE pack on my thigh, after hooking up the electrodes for the IFc.... This allowed she said for high currents to be used without pain. And it seemed to work for me.

The only heat I use now is for GI spasms, and then only for 15 minutes or so. My chiro from years ago told me that heat will stimulate nerves, so if you have nerve pain, avoid it for any time over 10 minutes. Too much heat inflames nerves, she said.
And for me that has turned out to be correct and useful advice.

The secret is to use only in MODERATION.

Melody u said ur friend has idiopathic pn. Do u know if this hot/cold treatment could also help someone with a known nerve compression like tarsal tunnel or common or deep peroneal n. Comp.?[
sounds lik u could be on to something here! Let me know if u find any info on this.
thanks rhonda

B][/B]

Quote:

Originally Posted by MelodyL (Post 1022765)

Hi all.
I don't want to raise any false hopes but a friend of mine called me today. He has suffered from Idiopathic PN for 7 years. His toes are so weak that he pulled a sheet over his toes once and broke one of them. His PN was so severe that you could not touch his toes or feet because of their sensitivity.

Well!!! he met up with a woman from Russia who got her medical degree in Russia when she was 17. She then came to America and it was too hard to get a medical degree here so she became an herboligist (or herbalist) and massage specialist. She gave my friend some kind of tea blend (to de-toxify his body) first. She told him. "I can't cure you but I can help you to heal yourself". She believes the immune system attacks the nervous system and that we have to SHOCK the systems back into alignment.

So some time ago he began to do a cold/hot therapy that she explained to him. And he explained it to me over the phone. Here is what he does every day , 2 x a day. (Start at 30 seconds the first time) And now he does 10 minutes twice a day.

He takes two containers (big enough to put your feet in). One container has ice cold water and the other container has hot water.

He alternates both feet in each container (starting at 30 seconds initially). He got such GREAT results that he carries buckets of ice up to the bathroom and he does an ICE BUCKET kind of water in one container and hot water in the other container. Now he's up to 10 minutes two times a day.

He said "whatever this is doing to me, I don't know but I am getting the feeling back in my feet and listen to me doing jumping jacks". And I could here him on the other end of the phone and he was doing jumping jacks. He also RAN today. He hasn't done anything like this in 7 years. His pain level was HORRIBLE.

He told me "I feel great". So maybe this SHOCK to the system kind of treatment works. Initially after drinking the tea, he really cleaned out his system so this doctor explained that we have to get the toxins out of our bodies first and then shock our bodies back into sync.

I just wanted to share his success with all of you. I told this to Alan and he said: "Listen, I have a stent, I'm not sticking my feet into any bucket of ice cold water unless I run this by my doctor first". I said'Good enough". So when he goes to his next appointment I'm asking his doctor and if he gives him the go ahead, I hope he tries this.

The russian lady said "I can't heal dead nerves but some nerves just have to be reanimated and that's what shocking them does" (or something to that effect).

And when I tell you that my friend who has had bad neuropathy for 7 years is now a NEW person, believe me. He was in such good spirits today HE DID JUMPING JACKS. Good Lord.

So if anyone has heard of this please advise.

Thanks much

Melody

Quote:

Originally Posted by 16rhonda (Post 1024155)

Hi. The only thing I know is that it is still working for my friend. I have no idea if it works on anything else. It's STILL working for him. He is doing hula hoops now, he's so happy. He has been on IVIG for 7 years now. I don't imagine he will stop that because we know someone who got cocky, stopped her IVIG after 18 years and wound up back in a wheelchair, went back on IVIG but was never the same. I don't think my friend would stop his IVIG (that's an IV of Gammaglobulin), an immune system booster. My husband did that for 2 years but it had no effect on his neuropathy.

But one interesting thing happened yesterday. My husband went to the podiatrist for his usual appointment. He was having a really rough day with his neuropathy (a rough few days to be exact). I said to the doctor, "do you do trigger point injections?" He said "sure', let's give Alan some on the left foot (couldn't do the other because Alan has a recurrent foot ulcer on the other foot).

So he gave Alan the trigger point injection and lo and behold for the next 10 hours, Alan had no pain in his left foot.

The doctor said "this should usually last a few weeks but let's see). Alan says he's a lot better now than before the shot but who the heck knows.

And I ran the whole hot/cold thing by his podiatrist. Well!!! you should have seen the look on his face.

He said "OMG, please don't do that, no one should shock their nervous system that way".

Alan looked at me and said: "I told you so".

lol lol

Until Alan goes and runs this by Dr.Fred, he's not putting his feet in any hot and cold anything. Will update.

Melody

So the hot/cold guy is getting IVIG? Well that is a huge factor.

This anecdotal discussion of hot/cold would be far more believeable with a person not being treated with the BIG GUN drug of all time for PN! (and for 7 yrs no less!).

I don't think this sounds crazy. You can imagine that this process would increase circulation in the area. That's great that it seems to be helping your friend. Give it some time and see how it goes. There are lots of neuropathy treatments, and each helps some people, depending on the cause of their PN and their body's unique characteristics.
Ron

Quote:

Originally Posted by Electron (Post 1025082)

Hi Ron:

My husband has decided he is NOT going to try this. He thinks it will give him a heart attack. Nothing I can say or do will have an impact on what another person will do. Because I know this, there is nothing I CAN do. When we go and visit his primary care physician, Dr. Fred, I'll run it by him. But Alan has already said "I don't care what he says, I'm not sticking my feet in an ice bucket' See?? My husband only heard the mention of an ice bucket. It doesn't matter that I said 'No one is putting your feet in any ice bucket, you start off SLOWLY"

He doesnt care. So naturally, why should I? He marches to his own drummer.

That's my Alan, lol

Melody