Originally Posted by Wide-O

Hmmm... while nobody would argue that smoking is healthy or a good idea, I very much doubt it plays a big role in PN - apart from hindering B12 methylation (which can be mostly corrected with supplements) in the short term.

I think when you are just coming to terms with a pretty horrible illness, the last thing you need is people telling you you are in denial. No offense, but I don't think that's very helpful right now.

Yes, the mid to longer term plan should be to quit. Obvious. But. One of the side effects of quitting is anxiety attacks (been there...), which can be unhealthier in the short term. So one might want to take their time to take stock and see what can be changed when it comes to lifestyle.

I'm still dragging (pun not intended) my feet about quitting, not so much because it affects my PN - it doesn't - but because it's horrible and expensive.

So yes, do plan to give up, but perhaps wait until you are in a better head space. Your GP may be right for now - they sometimes are.

Originally Posted by lined_in_silver

Hey everyone - I hope you're all well and healing .
I haven't been on the forum in a while , due to working so much !

Anyway I've been sick for 3 years with nerve pain and numbness - was diagnosed this spring with Pn by way of nerve conduction study by my neurologist who just can't believe I have this at age 30. It does not run in my family.

I understand that there are many types of PN. I am desperate to find out which type I have. I do have some autonomic features - mainly my bladder goes nuts and feels full and irritated ( this was my first symptom 3 years ago)
I have severe bi lateral carpel tunnel which I am curious to know if this is common with Pn

Circulation seems to be poor , especially in my legs ( socks can't have tight elastic, and tights cut off blood flow very easily leaving my ankles purple . In the winter my hands and feet freeze immediately . I got frostbite often as a child. My thighs itch if I go for walks.

Burning is the most prominent symptom, and it seems to be even on both sides of my body. This included my stomach ( so strange , it's almost like having heartburn but much lower ) - my tummy is sensitive to the touch. If I bang my hand or foot the pain response is very exaggerated. My thighs burn, and are weak and crampy. My arms and back ( sort of up my spine ) burn.


Hands are numb in the morning for about 5 minutes and my arms are weak . I'm very thin, and I seem to have very All blood tests are normal. LOW Blood sugar, low iron, good b12, have tested Vit E, Lymes, lupis, brain MRI for Ms, ultrasounds , MRI of tailbone ( had insane pressure and burning for a good 6 months with sciatica, but nothing showed up on the scan ). Thyroid is fine. Hyper if anything. I haven't touched alcohol in a year and a half.

Some ppl have suggested this is psychological or spiritual which I find hard to believe.




I hope someone can provide some insight or any help. I need to get to the bottom of this - it has really changed my life.


Best,
Silver