Originally Posted by Kirky

Thanks for all your kind advise.

I am 44 years of age and have had a very active life in sports, but also on the social side and this is why I mentioned alcohol. I have been given the electrical tests and they came up positive after complaining about the bad sensations I was having in my feet. True enough I was found to have a mild neuropathy. However, the Dr's were interested as my father is a 10-15 year sufferer of PN. But they found no connection between the two of us through blood tests taken. Which was a surprise. I am still awaiting other results like B12. The decision on stopping alcohol and other things on my list in my action plan are all my idea as I want to test to see if my symptoms can be reduced or at least slowed down.

My main question that I feel no one can really help me with is how much time to I have? My work requires me to be on my feet as I am a professional soccer coach. Will I be able to continue with this? If not am I doing damage to them now by still working and occasionally running and demonstrating. Even though recently I have slowed right down and try and Direct more and have others do the work for me. It may be better just to change my approach to my work. I guess the next stage is to go to complete management where all I do is talk and not deliver.

No one knows in my work that I have this condition. I am trying to hide it.

Kitt. What else can one take other than Gabapentin for the fuzzing in the feet? If I do go up to 1800 mg will my fuzzing just stop, but then have many side effects?

Wow so many questions Kitt. Thanks again for talking to me. I hope you are OK and finding a way?

Originally Posted by Kirky

Susanne and Kitt. Thanks for all your thoughts and information.

I am unsure really. I guess that is how it is for all of us. This is why I have come to this internet site in the hope of getting people's opinion.

My Neurolgist diagnosed me with Mild Motor and Sensory Axonal Polyneuropathy. But I know that this could also be CMT Typre 2? I wish he could be more specific, but for now this is all they can tell me from the conductivity test and blood test. I have not had any DNA tests. I hope to get to the bottom of it myself and this is why I want to try everything like stopping alcohol. My Dad was not a big drinker.

Through my research and this includes information on CMT, they say if you don't use it then you lose it. I certainly don't want to over do it and I am now very aware of my condition and careful not to do too much excessive movements in work and in play.

I really like chatting to you both as I know no one who is in my condition and situation. Any help and advice is greatly appreciated. I actually want to meet people with my condition too one day.

At this present time, my father and friends all tell me not to worry and just get on with it. So for now I'm just going to have to do that. However, it's me that feels these nasty sensations in my feet and naturally I wish to somehow reduce them or at least get used to them and learn to manage them.

Thanks.

Originally Posted by Kirky

By my research and by reading the threads on here. I feel that CMT in the worst case scenario and not knowing if I have this bothers me. I wish I could find out. I hope that possible future tests can help answer this for me. I hate not knowing what the cause of my problems are

If I do have CMT 2. Which my neurologist said could be possible? Would my exercise and training or type of work make it worse? Am I doing my feet no good by continuing with my profession? Is it possible to have CMT 2 and have it in a mild form or have it develop slowly? Or is this type of PN just bad news all round?