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Old 01-23-2014, 04:53 PM #11
Kitt Kitt is offline
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Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
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Quote:
Originally Posted by Kirky View Post
Susanne and Kitt. Thanks for all your thoughts and information.

I am unsure really. I guess that is how it is for all of us. This is why I have come to this internet site in the hope of getting people's opinion.

My Neurolgist diagnosed me with Mild Motor and Sensory Axonal Polyneuropathy. But I know that this could also be CMT Typre 2? I wish he could be more specific, but for now this is all they can tell me from the conductivity test and blood test. I have not had any DNA tests. I hope to get to the bottom of it myself and this is why I want to try everything like stopping alcohol. My Dad was not a big drinker.

Through my research and this includes information on CMT, they say if you don't use it then you lose it. I certainly don't want to over do it and I am now very aware of my condition and careful not to do too much excessive movements in work and in play.

I really like chatting to you both as I know no one who is in my condition and situation. Any help and advice is greatly appreciated. I actually want to meet people with my condition too one day.

At this present time, my father and friends all tell me not to worry and just get on with it. So for now I'm just going to have to do that. However, it's me that feels these nasty sensations in my feet and naturally I wish to somehow reduce them or at least get used to them and learn to manage them.

Thanks.
It seems that you do need DNA blood testing. That should tell a whole lot. And, as I mentioned, EMG/NCV testing can also tell much as far as CMT 1 or CMT 2 and family history of course. And, I do agree that there are many many causes of PN. Good luck.
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