Thank you. I wondered about that as well. I go again in February, and am going to research as much as possible before I go back. I with there was a doctor whose specialty was hereditary neuropathy but have not found one yet. The first neurologist didn't want me on anything until I needed it and said we would treat the symptoms as they come. But he is now 2 hours away from me. I may keep looking.
Quote:
Originally Posted by Dr. Smith
You're not being crazy, but I don't know about that doctor. If gabapentin could/would slow progression, people wouldn't have to increase their dosages periodically until the medication no longer worked. I'm also curious where he got the notion it had any effect on numbness(?)
Everyone is different. My last neurologist pushed it on me for burning pain that was keeping me up nights; wrote a scrip for 300 mg. capsules (I forget how many per day). I asked him to write it for 100 mg (the smallest they make) instead, and I'd take it "as needed" and titrate it myself—if I needed more/ a higher dose, I could call and he could write another one. I'm very sensitive to gabapentin (and I've since met others who are also). 100 mg at night was enough to carry me through 24 hours, and I didn't even need it every day.
I had only taken it a few times when I started R-Lipoic Acid (RLA). The RLA stopped the burning pain completely within a few days, and it hasn't been back since (except if I eat something I shouldn't) and I haven't needed/taken the gabapentin since.
Doc
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01-26-2014, 08:11 PM
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