I wish I could offer some help, but this seems pretty serious now to me. Could you have more going on besides the CMT? That is always possible. I'd get a doctor's opinion on it all.

Susanne, you are always a strength for members here, so I do hope you get some help with this new round of pain.

Long term users of opiates you know make more receptors, and that then requires higher doses to fill those. It is the tolerance spiral.

Once things get this complicated, your only recourse is going to be medical and doctors' opinions.

Debi... you are really lucky to have such a wonderful family to step up to the plate for you.