I don't know whether my Rheumatologist is correct in saying 20% of the people diagnosed with Sjogren's actually have inflammatory polyneuropathy or not. He seems to be a very knowledgeable doctor and is also on the faculty at our medical school here.

I have the markers, the dry everything symptoms etc. I just don't have a lip biopsy and think I could do without that. My blood work is repeated constantly, and the markers have been present for years. He is very insistent that my problems are neurological, but says that inflammation is present.

I did see a very kind pain management doctor who had me try 25mg of Lyrica, which did nothing. I am now giving Neurontin a try. THe combination of that along with Flexeril seems to help quite a bit...

Maybe I misunderstood the charge for the IV's. That sounds high compared to the above comment.
Cathie

From what I have found it can be connected.

What is Inflammatory Polyneuropathy? Symptoms? How is it dx'd? One doctor I went to mentioned it. Now I'm very curious.

--more often referred to as CIDP (chronic inflammatory demyelinating polyneuropathy) is an autoimmune condition that is often analogized to a slower, less acute onset of Guillain Barre syndrome.

There is an autoimmune attack on the myelin sheathing of the larger sensory and motor nerves, which results in degraded nerve signalling and a host of symptoms. Typically in CIDP the motor symptoms are greater than the sensory ones, though there are variants in which sensory symptoms are paramount. People with CIDP often notice problems with walking or gross motor control initially, and it is easy to confuse the condition with other neuromuscular diseases.

Given that the mechanism is autoimmune, this is a neuropathy condition that can frequently be treated by immune-modulating therapies such as intravenous immunoglobulin (IVIg) or plasmaphoresis. The trick is getting a doctor who suspects the condition, will do the right testing, and who will go to bat for immune modulating therapy if indicated (such therapies are extremely costly and insurance companies are not usually very cooperative).

See:

http://neuromuscular.wustl.edu/antib...mdem.html#cidp

http://www.gbs-cidp.org/home/cidp/cidp/

http://emedicine.medscape.com/article/1172965-overview