Jon Sparky,

Interested to hear about your experience and if you like the neuro you will be seeing.

I too am from San Diego (Encinitas) and have had idiopathic SFN for 20 years. Ironically, I just saw a neuro at UCSD just yesterday by the name of Dr. Sheean. He only sees people for second opinions, but I thought he was really impressive and eager to keep searching for a diagnosis and treatment, which was refreshing.

Don't be discouraged, it was at the very same clinic 20 years ago that a neuro that still practices there said "I wouldn't put you through those invasive tests even if you were my own child". Well, I got a second opinion at UCDS La Jolla and found out that I had elevated spinal fluid proteins and was diagnosed with PN. Keep advocating for yourself, and best of luck on your journey.