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Old 05-25-2007, 11:32 PM #1
Brian Brian is offline
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Brian Brian is offline
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Join Date: Oct 2006
Location: Australia
Posts: 1,256
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Jack, i can understand that you were very highly stressed and you were in horrific pain and were not getting any real answers even after having surgery,
crikey who wouldn't be upset.
I know when i first got PN, i felt so confused about it all, it was driving me nuts, i always thought that if i seen a doctor they would know what is wrong and things would get better, not so, i seen GP after GP all with different diagnoses and no real answers, my stress levels were very high, it took 7 doc's all up until i found a proper diagnoses, this doctor was doing accupunture for me, his about 80 years old but still practicing full time,this bloke really knows his stuff he use to run a school of magnetic therapy as well,we get on real well and i happened to mention about my feet to him whilst he was doing fixing my neck, he then just ran a pointy neddle down both of my legs and they were so hypersensitive and he just said possible Neuritis, but you will need tests to confirm it and see my local doc about it, as this doc is 35 klms away from were i live.
Even then my stress levels started to quite down, severity of symptoms went down to, then my next big break was stumbling accross the old PN forum, all the people there helped me the rest of the way, giving me great advise that i followed.

I am sure that everyone here has a story to tell when they were struck with this PN stuff, its terrible stuff that know one deserves, just like you, but you won't find a better bunch of faithful and caring people that know excactly what you are going through and will try their best to help you from their own experiences.
I think eventually most will get to the the stage of " ok, i have this painfull problem but its not going away in a hurry, so i will have to deal with it the best way i can " and thats all we can do, except keep on trying to find the cause, take b12 and other recommended supplements, and a good healthy diet has to help, Wings42 - has some very good threads in the stickies, that are well worth reading, our bodies have got a remarkable abilty to repair itself , giving your body the best chance to do so is the way to go, i reckon.
good luck,
Brian

Last edited by Brian; 05-26-2007 at 08:05 AM.
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Old 05-26-2007, 11:09 AM #2
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LizaJane LizaJane is offline
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Default Rsd/crps

jakatak---I haven't read most of your posts, for various reasons, but I do understand that you have a lot of pain following foot surgery. As you may or may not know (don't know if you've followed my posts) I have a lot of pain following spinal surgery.

It's beginning to look to me like I have the beginnings of CRPS, or RSD. It's certainly not advanced, but in going over the sites which explain this, I do think it's very possible that the reason I have continuing pain is NOT the failure of the surgery as much as my body's reaction to the surgery.

This syndrome is important. It's important to get treatment for it early. So, I'd like to refer you to the post I put: Is it RSD? And to the links that were sent to me. If you haven't already looked at them, this might be the time.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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