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Junior Member
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This is my first post, it will be a long one. Please bear with me.
I'm a 34 year old female, overall healthy and active. In my teens I started having occasional days where my inner forearm would be numb in the morning and last a day or so, like I slept funny and pinched a nerve. 1999-surgery for TMJ, successfully relieved most of the headaches and jaw locking issues. 2002-2006- pharmacy school, high stress, too many sleepless nights and too much partying 2007-start experiencing pain in wrists, hands, arms (right moreso) seemed to correlate with increased computer use and getting a smartphone. wore splints, didn't really help. 2010-first pregnancy, developed a numb patch on inner right foot that somewhat resolved as the years have gone by, sensations still abnormal. After a difficult L&D, had a numb patch on inner right knee, also has somewhat resolved. Breastfeeding, pumping (TMI but from the holding, squeezing of the breasts to get milk out), babywearing increased symptoms. When wearing my daughter (in a wrap carrier on my back or front) my right forearm and hand would tingle/hurt/go numb. 2012-EMG/NCV showed mild carpal and cubital tunnel issues, not nearly as severe as my symptoms according to surgeon. Had right CT release and ulnar nerve transpostion. Seemed to help at first, but as I returned to regular computer and phone use, it came right back. Pregnancy #2. 2013- you know what hit the proverbial fan. son was born in April, hand/arm symptoms very flared up from holding and breastfeeding. August- started noticing lower body symptoms in my feet, sometimes up the back of my legs- tingling, buzzing (2 days of literally feeling like I had a cell phone vibrating under my foot), and some whole body vibrating sensations. Saw a neuro asap suspecting MS. MRI of brain and entire spine was clear. Massage and chiro to no avail. Symptoms wax and wane, some days I hardly notice lower body symptoms. The upper body has worsened, and I suspect Thoracic outlet syndrome. I have trigger points in my scalenes that can induce the nerve pain down my arm. Pain radiates through pecs, around scapular area, and down arm into hands. Fingertips are all fairly numb. Typing/writing is very painful and almost impossible for anything other than a very short time. I assumed compression issues, until the lower body feelings started after which I began to investigate systemic issues. I also have an increase in eye floaters over this last year. Recently had dilated eye exam that was normal. In January, I had a month long period of skin itching at night, scalp and torso and arms mostly. I had about a 7 day period of skin hypersensitivity on upper back, neck, chest and arms. I currently am about a week into another period of night itching, this time with night sweats. I bruise easily, and it seems to be even worse lately. Possibly from supplements? May 2014 - miscarriage at 8 weeks I've had extensive bloodwork, and just visited the Miller Center for PN in Chicago and saw Dr. Rezania. He said brachial plexopathy (which didn't explain lower body issues) and ordered EMG/NCV. Which was perfectly normal. So this must be small fiber? I am suspecting an autoimmune process since it flared postpartum and with stress, although elevated ANA is the only marker to be elevated, and the docs all say that doesn't mean anything if it's elevated. Here are labs- March 2014 wbc 3.73 (l) rbc 4.84 hgb 15.3 hct 44.7 mcv 92.3 mch 31.5 (h) mchc 34.2 (h) plt 213 ne% 42.1 (l) ly% 45.8 (h) (there are a few more on the cbc but all wnl) Iron w %sat UIBC 318 (H) iron binding 269 %sat 14 (L) iron 51 ferritin 17 (low end of normal) B12 490 Vit D 30.7 (this was while on 2000 iu daily supplementation) Comprehensive Met Panel Albumin 5 (H) alk phos 85 sgpt 12 (L) sgot 17 BUN 11 calcium 9.8 chloride 105 t protein 7.5 creatinine 0.9 glucose 92 potassium 4 sodium 142 bilirubin-T 0.5 co2 27 AIC 5.1 lipids all good Sed rate -9 CRP <0.5 Free t4 1.2 TSH 1.7 TPO 29.1 Serum protein electrophoresis- normal tissue transglutaminase ab igG igA - normal ANA - positive, 1:160 nucleolar pattern SSA 10 SSB 6 RNP 15 Lyme - ELISA- negative June 2014 SSA/SSB - 1/1 Anti-DNA doublestranded AB <10 ANA 320 pattern - homogeneous cytoplasmic antibodies present CRP <3 Prot electrophoresis again normal Current meds/supplements Ferrous sulfate 325 mg tid (often only 1-2 times daily) Omega 3 1250 mg daily Vitamin E 400 iu daily Vit K2 daily - forgot bottle, not sure of dose or why I'm taking it Primal Defense probiotic daily Prenatal vitamin daily D3 2000iu 1 or 2 daily benfotiamine 300mg twice daily (started about a week ago, no difference noted yet) Coq10 100 mg -3-4 daily aspirin 81 mg daily NatualCalm magnesium 1 tsp daily Maca powder, bee pollen and royal jelly (fertility supplements) Whew, ok thoughts? |
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