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Old 06-24-2014, 10:27 AM #1
windypetunia windypetunia is offline
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Join Date: Jun 2014
Posts: 11
8 yr Member
windypetunia windypetunia is offline
Junior Member
 
Join Date: Jun 2014
Posts: 11
8 yr Member
Default My intro and history, labs inc. Opinions needed.

This is my first post, it will be a long one. Please bear with me.
I'm a 34 year old female, overall healthy and active.

In my teens I started having occasional days where my inner forearm would be numb in the morning and last a day or so, like I slept funny and pinched a nerve.

1999-surgery for TMJ, successfully relieved most of the headaches and jaw locking issues.
2002-2006- pharmacy school, high stress, too many sleepless nights and too much partying
2007-start experiencing pain in wrists, hands, arms (right moreso) seemed to correlate with increased computer use and getting a smartphone. wore splints, didn't really help.

2010-first pregnancy, developed a numb patch on inner right foot that somewhat resolved as the years have gone by, sensations still abnormal. After a difficult L&D, had a numb patch on inner right knee, also has somewhat resolved. Breastfeeding, pumping (TMI but from the holding, squeezing of the breasts to get milk out), babywearing increased symptoms. When wearing my daughter (in a wrap carrier on my back or front) my right forearm and hand would tingle/hurt/go numb.

2012-EMG/NCV showed mild carpal and cubital tunnel issues, not nearly as severe as my symptoms according to surgeon. Had right CT release and ulnar nerve transpostion. Seemed to help at first, but as I returned to regular computer and phone use, it came right back. Pregnancy #2.

2013- you know what hit the proverbial fan. son was born in April, hand/arm symptoms very flared up from holding and breastfeeding. August- started noticing lower body symptoms in my feet, sometimes up the back of my legs- tingling, buzzing (2 days of literally feeling like I had a cell phone vibrating under my foot), and some whole body vibrating sensations. Saw a neuro asap suspecting MS. MRI of brain and entire spine was clear. Massage and chiro to no avail. Symptoms wax and wane, some days I hardly notice lower body symptoms. The upper body has worsened, and I suspect Thoracic outlet syndrome. I have trigger points in my scalenes that can induce the nerve pain down my arm. Pain radiates through pecs, around scapular area, and down arm into hands. Fingertips are all fairly numb. Typing/writing is very painful and almost impossible for anything other than a very short time. I assumed compression issues, until the lower body feelings started after which I began to investigate systemic issues.
I also have an increase in eye floaters over this last year. Recently had dilated eye exam that was normal. In January, I had a month long period of skin itching at night, scalp and torso and arms mostly. I had about a 7 day period of skin hypersensitivity on upper back, neck, chest and arms. I currently am about a week into another period of night itching, this time with night sweats.
I bruise easily, and it seems to be even worse lately. Possibly from supplements?

May 2014 - miscarriage at 8 weeks

I've had extensive bloodwork, and just visited the Miller Center for PN in Chicago and saw Dr. Rezania. He said brachial plexopathy (which didn't explain lower body issues) and ordered EMG/NCV. Which was perfectly normal. So this must be small fiber? I am suspecting an autoimmune process since it flared postpartum and with stress, although elevated ANA is the only marker to be elevated, and the docs all say that doesn't mean anything if it's elevated.

Here are labs-
March 2014
wbc 3.73 (l)
rbc 4.84
hgb 15.3
hct 44.7
mcv 92.3
mch 31.5 (h)
mchc 34.2 (h)

plt 213
ne% 42.1 (l)
ly% 45.8 (h)

(there are a few more on the cbc but all wnl)

Iron w %sat
UIBC 318 (H)
iron binding 269
%sat 14 (L)
iron 51
ferritin 17 (low end of normal)
B12 490
Vit D 30.7 (this was while on 2000 iu daily supplementation)


Comprehensive Met Panel
Albumin 5 (H)
alk phos 85
sgpt 12 (L)
sgot 17
BUN 11
calcium 9.8
chloride 105
t protein 7.5
creatinine 0.9
glucose 92
potassium 4
sodium 142
bilirubin-T 0.5
co2 27
AIC 5.1

lipids all good

Sed rate -9
CRP <0.5
Free t4 1.2
TSH 1.7
TPO 29.1

Serum protein electrophoresis- normal

tissue transglutaminase ab igG igA - normal

ANA - positive, 1:160 nucleolar pattern
SSA 10
SSB 6
RNP 15

Lyme - ELISA- negative

June 2014
SSA/SSB - 1/1
Anti-DNA doublestranded AB <10
ANA 320
pattern - homogeneous cytoplasmic antibodies present
CRP <3

Prot electrophoresis again normal

Current meds/supplements
Ferrous sulfate 325 mg tid (often only 1-2 times daily)
Omega 3 1250 mg daily
Vitamin E 400 iu daily
Vit K2 daily - forgot bottle, not sure of dose or why I'm taking it
Primal Defense probiotic daily
Prenatal vitamin daily
D3 2000iu 1 or 2 daily
benfotiamine 300mg twice daily (started about a week ago, no difference noted yet)
Coq10 100 mg -3-4 daily
aspirin 81 mg daily
NatualCalm magnesium 1 tsp daily

Maca powder, bee pollen and royal jelly (fertility supplements)

Whew, ok thoughts?
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