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Old 09-25-2015, 02:59 PM #11
9/11 Hubbynwife 9/11 Hubbynwife is offline
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9/11 Hubbynwife 9/11 Hubbynwife is offline
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Join Date: Sep 2015
Posts: 4
8 yr Member
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Quote:
Originally Posted by echoes long ago View Post
coincidentally 2003 is also when i was diagnosed officially with Peripheral Neuropathy through an EMG/NCS. My feet started going numb in October of 2001 at the same time i had numerous respiratory infections and developed chronic asthma.

The World Trade Center Health Registry is sending out questionnaires to people who have autoimmune diseases and were at the world trade center. They are trying to establish a direct correlation between exposure and autoimmune conditions. You should contact them and have them send you a questionnaire on it. Do you get their regular surverys every few years?


Are you in the World Trade Center Medical Monitoring Program, now known at the World Trade Center Health Program?
Hello,

Yes, I am in the WTCHP. I have been doing the surveys since 2003. I now have an anterior lesion on T11 in the bone marrow of my spine. I go for a bone scan next week. The "fun" never seems to end.

I appreciate your updates. I just turned in this years survey. It would be great if they began coverage. The medication is outrageously expensive.

9/11 Hubbynwife
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