Winter is coming on and my feet are going cold and some burning as usual--

with PN does the numb toe effect just show up one day ?? I am starting to get this on and off in 2 toes each foot. I feel it more when lie down.oh and I have toe tingling This usually is in the base of my foot with the vibrations

CAN MOST OF YOU SEE the nerves in the side of your foot moving/contracting?

I stopped my supplements as on other drugs which probably has not done me any good.

Also does SFN spread really fast usually? I think that is really what I have but has been a slower progression over several yrs. I had a skin punch done ruled it out but the test did say there were changes and to do the test again if symptoms persist. I did not like this the first time so figured what is the point doing it again. I am idiopathic. Thanks

I am sure everyone is different concerning the numbness of the toes. A few of mine are numb but I don't really notice it unless I run in to something with those toes....I wait for it to hurt and.....nothing.....then I can hit them and they have to pull me out of the ceiling.

I have noticed my 2nd toe on each foot moving on their own...weird to watch for sure My feet LOVE the cold weather. When they get really bad I can walk out onto my porch (it's terracotta) and just stand there.....ahhhhh.....so nice to the bottom of my hurting feet !

I've heard that neuropathy is usually a slow progression over years. When I look back in time I realize that I would come home from working all day, cook, clean up and hit the recliner.....I would look at my toes and think of the athletics foot commercial that shows flames coming off the toes....that is exactly how mine felt.....the next morning I was fine. Little did I know then but this SFN was working on me. I was already determined to be pre-diabetic and was on metformin at the time. I did mention it to my PCP one time and she asked if I wanted anything for it and I said no....wish now I had said yes ! Then came the cancer and 6 rounds of chemo.....a month later it was full on SFN at it's best. Dx'd via skin punch biopsy as having no A and C fibers left in my feet. It's been progressing since then (last chemo treatment was 3.27.13) and is now in my legs, hands and both arms except upper left arm.

Did you not like the actual skin punch biopsy or just the results ? I believe many people have several over the years to determine if the nerves are healing or not. Depending on how long it has been since your test you might want to consider having another one to see if the supplements helped or if not have they gotten worse.

Take care and keep us posted.

Debi from Georgia

I doubt you will see nerves "moving".... You may see an arterial pulse which will match your pulse if you take it in your wrist at the same time.

You are probably seeing tendons twitching, or muscles rippling.

I'd do the magnesium lotion on the tops of your feet each night.
Use a quarter's diameter divided in half for each foot, rub it in up to your ankles (including them if it goes that far). This will open up your circulation and help with the muscle twitching.

I have always seen since PN on the side of my foot and sometimes the bottom movement. It is not a heart beat type .. contractions like but I can't feel them only see them. I guess that is fascilations?

I did not like the punch the shot etc.. a podiatrist did this for me. I know an EMG a couple yrs back said this was progressing. In summer, I don't notice it so much and all the constant vibration was not as noticeable but maybe that was a bad thing not a good thing.

I think I am going to order and Anodyne unit and see if helps Thanks for the replies

Is there any difference between Magnesium Sulfate Cream and the Magnesium Lotion. If so, which do you consider best to use.

I had sent a post to you a couple of weeks ago mentioning I had used the Magnesium Sulfate Cream on my ankles because of burning; especially toward evening. The top of my feet also have some burning.

I mentioned it appeared to have the Sorbital effect on me. You had written that the cream should not cause this.

I have been hesitant to try it again and was wondering if there was much difference between lotion and cream. Every now and then I do rub very lightly some rubbing alcohol which seems to be somewhat helpful.

Since I have edema and Stasis Dermatatis the circulation is really important. I have the pooling of blood; especially at the ankles. The circulation you mention sparks my interest since I think that would be very beneficial as well.


Gerry