NeuroTalk Support Groups - Help! the neurologist told me today there is nothing that can be done.

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Help! the neurologist told me today there is nothing that can be done. (https://www.neurotalk.org/peripheral-neuropathy/211044-help-neurologist-told.html)

aneczka

10-17-2014 02:24 PM

No other symptoms, Kitt, and no neurological disorders or anything similar in the family. I will do an EMG next week.

Jomar

10-17-2014 03:04 PM

OA and RA -- osteo arthritis and rheumatoid arthritis

Do you notice if you have forward head posture, or forward/hunched/rolled shoulders? Viewed from the side in a mirror? or ask a friend..

Those postures can close/pinch/impinge the area where many nerves and blood flow to the arms and hands..
Also does your armpit feel tight or puffy?
Neck muscles tight or burning, same for upper back?

http://neurotalk.psychcentral.com/album.php?albumid=422

aneczka

10-17-2014 03:27 PM

Osteo-arthritis -most probably not, as the X-rays were good. Rheumatoid - what is the way to find out? I have that on my list of things to ask the neuro next week.

Iactually have a visible ball (not sure how to describe it) on my upper back muscle; my physio told me I shouldn't worry and should swim more to get it go away. I think it got better in the summer. Sure I will want to have an MRI on that area though, even if it is "just" a muscle.

I surely do have hunched shoulders.

Neck muscles tight, yes, and only get better with lots of swimming.

I think I will have to do that MRI.

aneczka

10-17-2014 04:02 PM

Regarding symptoms, I forgot about fasciculations. I had a lot of them 7 years ago on my left hand and forearm, now less but they do happen. I have them on my left hand also, on the hand and forearm with a pinching sensation. I've noticed them today also on my right upper arm, and I dont like it, because it makes me think the disease- whatever it is - is progressing not just to my left side, but alo upwards.. :((

hopeful

10-17-2014 08:41 PM

Quote:

Originally Posted by beatle (Post 1103621)

Have you tried Tai Chi? You could do it at home to a DVD, it moves slowly so there is minimal risk for injury or flareup and I have found it to be one effective tool for balance and coordination.

http://www.ncbi.nlm.nih.gov/m/pubmed/20503464/

Can you recommend a specific DVD?

beatle

10-17-2014 09:57 PM

Quote:

Originally Posted by hopeful (Post 1103738)

Can you recommend a specific DVD?

Scott Cole and Dr Paul Lam are both great instructors but before you buy something you might not use, check out Tai Chi on YouTube. It's slow and meditative but if you can get into it and do the movements, it can help with balance and coordination.

aneczka

10-18-2014 08:41 AM

Is it neuropathy at all?

Can any neuropathy dramatically waste your hands?

echoes long ago

10-18-2014 09:37 AM

CIDP can. (chronic inflammatory demyelinating polyneuropathy)

mrsD	10-18-2014 09:43 AM

enter "wasting hand muscles" into Google.

Here is one example:
http://www.rightdiagnosis.com/sym/wa...nd_muscles.htm

Kitt	10-18-2014 09:49 AM

Quote:

Originally Posted by aneczka (Post 1103813)

Can any neuropathy dramatically waste your hands?

Yes, CMT can and it is inherited.

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