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-   -   Help! the neurologist told me today there is nothing that can be done. (https://www.neurotalk.org/peripheral-neuropathy/211044-help-neurologist-told.html)

aneczka 10-18-2014 09:57 AM

Quote:

Originally Posted by echoes long ago (Post 1103823)
CIDP can. (chronic inflammatory demyelinating polyneuropathy)

Thanks.. and how is it diagnosed/treated?

aneczka 10-18-2014 10:11 AM

This is treatable, I see.. the useless neuro I saw yesterday told me immunoglobulines may be effective, although he didnt believe it was useful. But he was at loss, so I dont know what to make of it. Gonna see another one next monday.

Jomar 10-18-2014 11:39 AM

Muscle wasting can happen from pinched/entrapped nerves too, many with severe TOS can have it happen and sometimes a claw effect if severe enough and long term..

I would start working on postures and getting the head/shoulders back and down to see if this helps a bit or not.. you can do this on your own while seeking other dx & tx..

I posted my album link with some simple self help ideas previously.
I would suggest doing those many times a day.
If pain increases then stop, or ease back to a less demanding positions, like the yoga corpse pose..

aneczka 10-18-2014 11:52 AM

If a nerve is pinched/entrapped, which was also the idea of my physio, it would be visible on MRI? So that the right points would get targeted with any necessary therapy.

aneczka 10-18-2014 02:17 PM

Drugs-induced?
 
Not sure if this is related. Around 4 years before the whole problem started, I was diagnosed with severe depression and was put on antidepressants. 2 months or 1 month before my right hand just dropped down, I changed antidepressants from SSRIs to an older tri-cyclic one (don't remember the name), which I didn't tolerate well. Could that be somehow related?

The only potential, clear pattern I see in my health history, would be gluten intolerance or it. B 12 deficiency. I saw a doctor once for chronic fatigue when I was 16, and got a huge depression years later.

Jomar 10-18-2014 02:33 PM

Many of the TOS issues don't show up on MRI unfortunately. If a bony or some anomaly then it should show .
Makes harder to get a knowledgeable dx..
plus if laying down for MRI the compression is usually less as it could be something due to being upright and postural.

Sometimes it is not a large/main nerve that is involved but smaller nerves.

Actually an expert /advanced PT should be able to evaluate and test hands on to track it down , often more cost effective than imaging .

Lara 10-18-2014 02:38 PM

Hi aneczka. Regarding your hand.

I saw your post here just now about muscle wasting.

I had a pinched ulnar nerve (cubital tunnel syndrome) many years ago and that certainly changed the way my hand looked.

aneczka 10-18-2014 02:43 PM

Lara, it's just .. that my both hands are now severely affected, not just one. How can you get your both ulnars pinched? In a distance of 7 years? I think something more creepy is going on. I would like it to be just something like that, mechanical-sounding, which can be corrected. How did they diagnose it?

Lara 10-18-2014 02:43 PM

I understand. It's maybe not related at all. Of course it would be possible to have trapped nerves somewhere for a long time, but why I don't know.

This is old but it explains some more about cubital tunnel syndrome. I'm not saying that's what's going on, but it can cause wasting in hands.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2599973/
Postgrad Med J. Jan 2007; 83(975): 28–31.
doi: 10.1136/pgmj.2006.047456

If I was in your position I'd be wondering about autoimmune diseases.

aneczka 10-18-2014 02:58 PM

Oh, and in my both hands, it was thumbs that got affected first, and are worst now. It could be some other nerve so.


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