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-   -   Help! the neurologist told me today there is nothing that can be done. (https://www.neurotalk.org/peripheral-neuropathy/211044-help-neurologist-told.html)

Jomar 10-18-2014 02:58 PM

Just an thought also, if it might be postural/repetitive , perhaps an expert chiropractor, they can adjust extremities too, just verify they trained/studied that.

Mine adjusted neck.shoulders, elbow, wrist ,foot, hip - whenever I had a question or new pain come up he checked it out...
I really had the best improvements with my chiro.... but i have chronic repetitive strain/TOS/myofascial pain...

Some are better than others, same as docs and PTs , mechanics,plumbers etc on and on..:D
always are some very good ones and then not so good ones..


Thumbs - De Quervain's tenosynovitis?? was that checked for? that was one of my first dx when all my RSI/TOS stuff started..https://www.google.com/search?q=dequarvin&gws_rd=ssl

Maybe you should look for a Physiatrist, or rehabilitation physicians, are nerve, muscle, and bone experts who treat injuries or illnesses that affect how you move.
https://www.google.com/search?q=dequ...#q=physiatrist

aneczka 10-18-2014 03:03 PM

Would a good orthopedic help? I've got a tip from my physio, a friend of his is apparently a good ortho and a spine surgeon, my physio told me to see him. Well, I wonder if that makes sense at all.

aneczka 10-19-2014 05:15 PM

Dental titanium
 
A few weeks before my situation deteriorated, I've had a dental semi-implant, from titanium, inserted by my dentist. Could that be an issue? I so hope not.. he did a good job.

aneczka 10-19-2014 06:27 PM

I will need to have this titanium removed and replaced by zirconia, which is safe?

Lara 10-19-2014 06:35 PM

Hello aneczka,

As well as posting here about the dental implant, you could perhaps also ask members on the
Dentistry and Dental Issues Forum

take care

Electron 10-20-2014 11:08 AM

I assume you had your blood sugar and B-12 levels checked? You may want to see a corrective chiropractor. I believe they will understand the spine much better than a typical MD. If you are in southern CA go to John Begman.
Ron

hopeful 10-20-2014 11:41 AM

Quote:

Originally Posted by beatle (Post 1103746)
Scott Cole and Dr Paul Lam are both great instructors but before you buy something you might not use, check out Tai Chi on YouTube. It's slow and meditative but if you can get into it and do the movements, it can help with balance and coordination.

Thanks Beatle I brought one a while back but it was actually a workout. It just showed you the moves. I'm going to try YouTube.

Marie33 10-20-2014 05:43 PM

[QUOTE=aneczka;1103605]I have no family history of neurological diseases. My symptoms are very troubling, I can't lift my right hand and my both thumbs at all and it has progressed, there is big muscle atrophy, so yes, I do get upset when a doctor tells me he can't do anything without a proper check, or re-check. I will try to get my old clinical results from 7 years ago, because, maybe, something was missing, badly interpreted, or overlooked.

aneczka
You say your clinical tests results are from 7 years ago. Does that include the emg/ncs that were "normal" back then? Maybe its time to have those tests done again. My Neuromuscular Doctor/Neurologist repeated my tests two years later to see if there was any progression or a difference in results. Sounds like you need more testing done. Did they tell you your polyneuropathy was Idiopathic? Sorry your going through this, neuropathy sucks!!

aneczka 10-21-2014 06:37 AM

I'm going to have EMG done again, in a university clinic here. I will also have my old readings from 7 years ago some time soon. Now, unfortunately, I've noticed I do have fasciculations in my legs also, I guess I just suppressed this information and didnt want to think about it. Anyway, I will have EMG on hands and legs.

They didnt actually tell me anything back then. "we dont know what it is, probably a local lesion which will go away on it own, but if it gets worse, come back to us". That was not helpful at all.

How can I stop any possible inflammation? I've got naproxen pills, are they any good?

hopeful 10-21-2014 12:16 PM

Quote:

Originally Posted by beatle (Post 1103746)
Scott Cole and Dr Paul Lam are both great instructors but before you buy something you might not use, check out Tai Chi on YouTube. It's slow and meditative but if you can get into it and do the movements, it can help with balance and coordination.

I just looked at Dr. Lam on YouTube. I'm going to try it but I'm laughing at myself thinking I'm never going to remember how to do these steps!:eek:


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