Interesting thread.

Ellsac, wishing you the answers you seek.

You have come to the right place for help and support. There are many here that are so helpful and have much insight.

Best wishes to you in your quest for answers.

Thanks, everyone.

Glen-glad to hear you had a good experience with Dr. Chin.

I have done a lot of research, and have printed out the list of possible causes to show Dr. Chin, and have printouts of all my labs so we can mark things off as we go along. I hope he doesn't think I am pushy, but I am used to being in control of my health. I almost died about 5 years ago, when I finally got diagnosed with autoimmune Addison's Disease. It was a struggle to find a doctor who recognized my symptoms, though, because it is fairly rare, and even now, I have a good endocrinologist, but the day to day care is all in my hands. I can't shake the feeling that there is an autoimmune aspect to all of this.

Also, the high vitamin B6. The two doctors I spike to seem to write this off, but it is on every list of possible causes for neuropathy that I have seen. It may not be the whole picture, but I feel it could be part of it.

For the ladies in the thread-do any of you notice a correlation between when your hormones shift and an increase in symptoms? I notice mine are worse during a few days before my period, when my period is ending, when I ovulate. Seems whenever that stuff happens, I get an increase in issues.

I think the most disconcerting thing about all of this, is the feeling that it is spreading. I now get pin prick sensations in my tongue, throat, and sometimes eyes.

I also seemed to develop dermagraphia during all of this (no itching, just bright red lines when skin is rubbed and scratched-also no swelling).

It is all so confusing. Well, until the 23rd I will continue to try and remain level headed, and not be too afraid of the future. My hope is that the horror stories I read are far and few between (loss of ability to walk-more severe autonomic involvement). I don't know where this leaves my husband and I as far as having a baby-if it turns into something autoimmune, I don't know how I feel about possibly passing anything on to my child-I also fear pregnancy making me worse, and not being to care for a child properly. Sigh...

Hey Ellsac,
I have not been officially diagnosed with SFN but have had some tests which suggest its presence or at least some type of problems with small fiber nerves. So you asked about if others have more problems around their periods. I thought I would reply because I actually was just looking into that recently after having a lot of searing pain in combination with numbness (it was very odd) down my right leg during my first day of my period. It got bad enough that I had to leave work but seemed to dissipate after I rested/slept for a while and then hasnt been that bad since (that was a few months ago). Is this at all similar to what you experienced?

I am always worse just befor my period and ovulation, it is well documented that women have more issues with pain at this time I think it's to do with the increased estrogen levels 😔😩

Hi ladies

Boiler..I don't have that specific symptom, but I definitely have worse ones. For instance, I was dealing with numb parts of my calf, muscle and tendon tightness around my knees, and an increase in pin prick sensations all over (I will get these in my throat and tongue also). My period has now been over for a few days, and my legs feel totally normal again, when for a few days there, I was getting freaked out that they would feel awful forever (I am working on curbing my catastrophic thinking hah).

The increase in pain makes sense, due to hormone fluctuationss