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#1 | ||
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Member
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I've been fighting it. I can't sleep. The neuropathy has now spread throughout my whole body. The pulsing pains had me up since 3 am and I am so sick of it. My feet hurt so much to walk on them today and if I lie down the pain shoots all around with random twitches everywhere and buzzing. I am exhausted.
In the beginning (September) when this thing attacked me, I took the drugs prescribed because at that point they thought it was just herniated discs, so I wasn't afraid to take drugs (oxcodone for pain and valium for spasms) for such a limited time. I was told 2-6 weeks for healing. Then the neuros all said- no this is not herniated discs, its something autoimmune going after your spinal cord....blah blah blah. Throughout the course of different doctors for 2 months and without a diagnosis, there was still the chance in my mind that this was herniated cervical discs and that I'd make a recovery. I am so anti medication that it upsets me to even take an ibuprofen let alone narcotics or longterm drugs. Anyway sorry this is taking so long. I was told by one rheumatologist that while whatever is wrong is healing I should try cymbalta. I did and it kept me up all night and gave me crazy diarrhea (sorry). Then flexeril and zanaflex. That did nothing for the spasms and made my already low blood pressure frighteningly worse. Then baclofen. That did nothing but make tired and grouchy. Then tramadol and that made me jittery all night with NO pain relief and worsening of spasms. One doctor wanted me to try nortriptylene, but my new neuro said it would probably give me side effects. |
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#2 | |||
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Co-Administrator
Community Support Team
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Have you thought about naturopathy, acupuncture, chiropractic?
If MDs can't help much, I'd think about trying some alternative care.
__________________
Search the NeuroTalk forums - . |
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"Thanks for this!" says: | Healthgirl (02-04-2015) |
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#3 | |||
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Senior Member
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They are usually hesitant about prescribing narcotic pains meds until AFTER you have tried everything else (Cymbalta, Neurontin, Lyrica, Lamictal, etc...the list goes on and on).
If they have concluded the findings as to the cause (autoimmune), then they should be considering IVIG as well. You should also consider some of the supplements MrsD suggests...can't hurt to try. BUt what ever you try, do so one thing at a time otherwise you won't know what is helping or what is giving you side-effects. |
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"Thanks for this!" says: | Healthgirl (02-04-2015) |
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#4 | ||
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Quote:
Yes I take all of the supplements effective for nerve health/repair and then some. At least it makes me feel proactive in some way. |
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#5 | |||
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Member
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Is medical marijuana an option where you live?
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#7 | ||
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Quote:
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"Thanks for this!" says: | beatle (02-09-2015) |
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#8 | ||
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Member
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Hi Ken,
Yes it is getting me down. I was so happy and loved life before this this crap hit me. So the pain is really getting to me. Making life more tolerable now, and withdrawing later on as you said sounds great, but with a progressive illness and being young, that terrifies me. I know no one has the answers though and in taking this one day at a time (which is all anyone has anyway), I guess I have to think of now and maybe willing to try something. |
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#9 | ||
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Member
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Anti depressants are the best for me. Even low dose lifts my mood and helps a lot with the being eaten alive by red fire ants sensations
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"Thanks for this!" says: | Healthgirl (02-11-2015) |
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#10 | ||
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Member
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Jomar,
I have tried all natural approaches to no avail, although my holistic lifestyle is what I believe is keeping me alive. Before this happened to me (it's almost 6 months now) I was a practicing holistic health counselor... the picture of health! Now I feel like a living advertisement: Hey! Look what healthy living does to you. ![]() |
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