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02-05-2015, 09:12 AM | #1 | ||
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I thought it couldn't get worse. Last night my legs from the knees down felt like they were standing dangerously close to to a camp fire. My entire body was having horrendous shooting pains and twitching throughout. I actually felt like muscles and joints are being eaten and my insides were trembling.
Can anyone tell me what happens next? I have read about the burning since I was diagnosed with SFN, but this was the first time it happened. I almost went to the ER. |
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02-06-2015, 01:38 PM | #2 | ||
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02-06-2015, 07:46 PM | #3 | ||
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In the morning that day I applied capascin to my feet and it didn't do much of anything. Then, that evening I took a warm epsom bath (which I do about 4 times a week). It usually is soothing. The bath felt strange on my feet and then shortly after when I got into bed, my legs were on fire! I'm wondering if the capascin on my feet from the morning was not a good mix with the warm water and set me off? It didn't happen last night (but I was terrified to take a bath so......) I just got the rest of the painful symptoms, but was thankful that the burning was not another permanent situation. |
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"Thanks for this!" says: | zkrp01 (02-07-2015) |
02-06-2015, 08:16 PM | #4 | |||
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Are you able to exercise at all HealthGirl? I've had a few really bad days in a row, and just went out and walked three miles today for the time in a few months. I thought I'd pay for it tonight, but I actually feel pretty good.
One day does not make for a trend, but if physical activity actually helps my symptoms, I'll force myself to do it. |
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02-09-2015, 02:24 PM | #5 | ||
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Depending on the day and the pain, I can walk. I can't run since this happened because my hip joints hurt and feel like they go out of place. Before this happened I worked out everyday doing interval training. It made me feel so good and strong. So now I walk on the days I can. Walking and stretching is all I can do right now. I tried to do about 10 squats one day and I paid for it. It doesn't seem that my muscles, joints, and ligaments can recover. I wish I knew why. I'm still desperately hoping its the low copper and ferritin. |
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02-09-2015, 03:00 PM | #6 | |||
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People with PN should stay away from steam rooms, heating pads (no more than 10-15 minutes tops), hot baths, etc. These just overstimulate nerves. They result in more long lasting pain if used frequently.
The only neuropathy exception is RSD (CRPS)...those patients cannot tolerate cold and seek out warmth. You can get the magnesium you need from Morton Epsom lotion used in small amounts once a day rubbed into the affected area. If you choose to soak in epsom salts instead, use only lukewarm water-- never hot. Also don't put too much epsom salts in the water, as it can sting dry broken skin. One application to an area can last 2 or more days, so you can rotate application sites. The nerves that register heat seem affected first in SFN...with cold sensing nerves last. That is why menthol or ice packs work well, because they block the erroneous heat sensing nerves and give temporary relief.
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02-10-2015, 08:56 PM | #7 | |||
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02-07-2015, 02:36 AM | #8 | |||
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"Thanks for this!" says: | Healthgirl (02-09-2015), zkrp01 (02-07-2015) |
02-09-2015, 02:17 PM | #9 | ||
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