I would rather there not be a link between nerve disorders and autism, because that is scary to me but I know there likely is. Glad your son gets relief from famvir and gabapentin, never heard of recurring shingles till now. My grandma had them a long time ago.

I was told by my local neurologist that he doesn't know what else to give me for neuropathy, he referred me to UOM and is just basically telling me to wait for the time being. I see his point but still wish he'd give me another med to try in the mean time. I saw a new family doctor today and got a few blood tests, like getting my thyroid checked.

I appreciate your positive thoughts. I wish the same for you and your sons.

I am sure once I get to UOM since it is a huge center I will find out about a lot more.

Hello Dustin, a mylogram was the test that the Neurosurgeon ran just before he told me that there was nothing that surgery could fix. I had mild numbness under my toes from playing games with my diabetes. Then I had a car accident and had a hard shock to the knee and right hip. Three days after the wreck I could tell something was going on. Your snowblower incident may have caused trauma. Let me clarify, first I was a bad patient for diabetes, then accident, then Mylogram and Conduction study. So I am a believer that trauma can have far ranging effects. (search Double Crush Syndrome). Mylogram is not bad test, they pressurize spine to see if you have leaks, if you leak, candidate for surgery, if watertight, no surgery.If you use the search function here you can learn much but it is early for you and try not to worry about things that have not happened. Good Luck, Ken in Texas.

Hello Ken,

I am gonna remember to ask for the myelogram, so thanks for the good recommendation. I did not have leg numbness before my back injury, nor burning pain. I did have a light and tiny tingle occasionally when trying to sleep and would shift my legs often but that may have been restless legs. I did not have trouble standing before my injury either.

I also agree trauma can have far reaching affects. I'm upset cause I've been diagnosed with a mild bulged disc and mild neuropathy but I am not feeling mild at all.

I am gonna ask for that test at UOM.

That sounds rough, dustinc. I'm sorry you find yourself here. You might have a glucose tolerance test to see if your blood sugar rises too high after meals, even though you test negative for 'diabetes.' This condition can cause PN. Also did you have your vitamin B12 level tested? You can just start taking B12 as methylcobalamin, 1000-5000 mcg per day, such as Jarrow's. That's a good idea to see a clinic that specializes in neuropathy, otherwise neurologists don't seem to know much about it. Keep a positive outlook, keep yourself healthy, and believe that you will heal. A healthy vegan diet, exercise, and meditation have helped me.

See here: https://sites.google.com/site/basicpoke/Home/neuropathy
There is a list of supplements that have shown to help people with PN. If you can't see that page then let me know.

Do you have any history of such pain or any family history of it? If not, I would lean toward this being acquired due to a toxin or a deficiency, rather than being hereditary.

Good stuff I have found on healing and how the body works, generally the stuff you won't hear from an MD:
Podcasts at: www.extremehealthradio.com (or iTunes)
"John Bergman" on youtube
Ron

Hi Dustin,

Sorry you find yourself here.

I'd like to reiterate Ron's suggestion of requesting an Oral Glucose Tolerance Test. I definitely am on the diabetes spectrum despite having perfectly normal Fasting Blood Glucose and A1c results. My problem showed up on the Oral Glucose Tolerance Test as well as home monitoring. If I eat a high carb meal, my blood glucose remains way too high for hours. Still, all my diabetes screening values are normal.

I personally feel anyone who ends up with an idiopathic neuropathy diagnosis should get this test. I know Johns Hopkins is currently doing a clinical study on the effects of even mildly elevated blood sugar and neuropathy. Second one down...

http://www.hopkinsmedicine.org/neuro...inical_trials/

I should add, though, that I have no idea if this is the cause of my neuropathy or not, but it remains a possibility, so I'm taking corrective action with my diet in case it is. Either way, it's good I caught the insulin resistance very early.

Hi,

I am also experiencing numbness, tingling, burning sensation and weakness from back side of my left thigh through my leg and foot for the past 2 years.

This has happened after severe back pain followed by Diskectemy and fusioning done to my L4-L5 position.

can any body guide me to get relief.

Welcome Aravindan.

You might go to the people who did your fusion and tell them an update. They may give a referral or start treatment for symptoms themselves. These days the go to drug in the Neurapathy world is Gabapentin. Some find relief to some degree and some have side effects that outweigh the relief. I started at 300mg/day and went up to 900. I have read that some go up to over 2500 mg/day. There is no clear roadmap to relief. Some other basics need to be investigated. If you are low in B-12 or vitamin-D, etc. I quit the Gaba but would go back and try a higher dose if I get worse. Good Luck, Ken in Texas.

For back problems, I really like what John Bergman has to say. See him on youtube. In your case, since it sounds like a spinal issue, I would sure pursue getting the problem corrected at its source, and this may require a chiropractor rather than an MD. You may need some drugs to tolerate the neuropathy pain (if that's what it is) in the meantime. I have found gabapentin and tramadol useful. Other common ones are Cymbalta & Lyrica. As when trying to heal any problem, keep your body healthy. Read lots of posts on this forum, lots of good tips for PN sufferers. Good luck.
Ron

Hello janieg,

I had to delete the link in the quote cause it would not let me post with it under 10 posts otherwise.

Yeah, I am going to take Ron's suggestion and get my glucose levels checked. It is a good idea for you to take corrective action early, it cannot hurt anything. I am glad you caught that early.

I do wonder if eating carbs has anything to do with this.

I am going to check out some of the other threads on this site to see if they are of further help. Thanks.