Hello,

I came upon this website in search of a forum to get advise. I'm not doing well, I will do my best to explain myself as clearly as I can. At the moment I am getting almost no relief for my neuropathy and am at a loss of what to do, other than wait and suffer.

I am 26 years old, for many years I had a light tingle in my legs where I would have trouble getting comfortable at night sleeping or watching a movie. I did not have numbness or burning pain in my legs however. It was like a minor irritant, I would shift my legs often and just complain about it. In January of 2014 I injured my back during a huge snow storm at home shoveling and using my shitty snow blower that was electric, and made it harder actually.

I connect the back injury because after that back injury I had full heavy numbness knees to toes after that day on January 6th. I suffered with numb legs and horrible back pain for many months, it put me out of work and I usually do work part time. I am autistic as well and obsess about all of this.

I saw a chiropactor for my back in May of 2014 and then a neurologist. He diagnosed me with a mild bulged disc and peripheral neuropathy but he didn't know why or what caused the neuropathy. He tested me for diabetes and found I didn't have diabetes. I am also not overweight. I previously thought of myself as healthy. I was told my b levels were fine.

I spent most of last year suffering and several months in physical therapy for my back. That helped my back and I take norco 500 for the back pain. The numbness kept getting gradually worse though. I have trouble standing for more than a few minutes.

I am not able to find proper medications that work for my neuropathy. I tried requip for one week and it made me feel nauseous for several hours each day like I was gonna puke. Next I was on neurontin for five months. It would work for awhile and then my body seemed to adjust, I would need a higher dose. I was getting horrible head aches from neurontin and at one point my neurologist sent me in for a brain mri. When that came back clean, I thought it may be the neurontin and stopped taking it for a week, my head aches heavily subsided.

Next I was put on lyrica, and got even worse head aches on a low dose of 50mg one a day. Finally I am trying trileptal and that is giving me horrible head aches too, seems to make me feel like my teeth are vibrating when I talk. I do not like these anti seizure medications and am seeking some relief as they make me feel so sick.

I want to know why I have neuropathy. So I getting in to UOM's Peripheral Neuropathy Center. I hope they can provide me with more answers. My neurologist doesn't speak much, I don't know if it truly is a mystery why I have neuropathy or he just won't look deeply enough.

I also want to add and I am not exaggerating. I got oral surgery for three impacted wisdom teeth on January 28th of this year and after that surgery wow did my symptoms get much worse. Everything got way worse, my legs got way more numb. I also started getting upper body numbness in my hands, arms, and am having periodic facial numbness in my lower lip, jaw and throat.

I believe they aggravated a nerve in my mouth. It seems that made my neuropathy flare up even more. I have noticed weird pains. I have pain in my right and left knee caps at times during bad episodes, pain in my left ankle and when my knuckles hit warm water. This comes and goes.

I am very depressed and frustrated cause my life has changed a lot and I don't feel very young. I hope to get surgery if I can pin point the problem because I don't wanna live like this. It sucks that I cannot take proper relief for my neuropathy and I am open to suggestions for relief beyond the anti seizure medications.

I hope to find out more about neuropathy at the specialty center as my current regular neurologist doesn't speak much and I am confused about why this is happening.

Thanks for reading.