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Old 02-16-2015, 12:39 AM #1
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That sounds rough, dustinc. I'm sorry you find yourself here. You might have a glucose tolerance test to see if your blood sugar rises too high after meals, even though you test negative for 'diabetes.' This condition can cause PN. Also did you have your vitamin B12 level tested? You can just start taking B12 as methylcobalamin, 1000-5000 mcg per day, such as Jarrow's. That's a good idea to see a clinic that specializes in neuropathy, otherwise neurologists don't seem to know much about it. Keep a positive outlook, keep yourself healthy, and believe that you will heal. A healthy vegan diet, exercise, and meditation have helped me.

See here: https://sites.google.com/site/basicpoke/Home/neuropathy
There is a list of supplements that have shown to help people with PN. If you can't see that page then let me know.

Do you have any history of such pain or any family history of it? If not, I would lean toward this being acquired due to a toxin or a deficiency, rather than being hereditary.

Good stuff I have found on healing and how the body works, generally the stuff you won't hear from an MD:
Podcasts at: www.extremehealthradio.com (or iTunes)
"John Bergman" on youtube
Ron
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Old 02-17-2015, 02:43 PM #2
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Hi Dustin,

Sorry you find yourself here.

I'd like to reiterate Ron's suggestion of requesting an Oral Glucose Tolerance Test. I definitely am on the diabetes spectrum despite having perfectly normal Fasting Blood Glucose and A1c results. My problem showed up on the Oral Glucose Tolerance Test as well as home monitoring. If I eat a high carb meal, my blood glucose remains way too high for hours. Still, all my diabetes screening values are normal.

I personally feel anyone who ends up with an idiopathic neuropathy diagnosis should get this test. I know Johns Hopkins is currently doing a clinical study on the effects of even mildly elevated blood sugar and neuropathy. Second one down...

http://www.hopkinsmedicine.org/neuro...inical_trials/

I should add, though, that I have no idea if this is the cause of my neuropathy or not, but it remains a possibility, so I'm taking corrective action with my diet in case it is. Either way, it's good I caught the insulin resistance very early.

Last edited by janieg; 02-18-2015 at 01:50 AM.
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Old 02-18-2015, 07:05 AM #3
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Default need guidance

Hi,

I am also experiencing numbness, tingling, burning sensation and weakness from back side of my left thigh through my leg and foot for the past 2 years.

This has happened after severe back pain followed by Diskectemy and fusioning done to my L4-L5 position.

can any body guide me to get relief.
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Old 02-18-2015, 10:13 AM #4
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Welcome Aravindan.
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Old 02-18-2015, 10:51 AM #5
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Thumbs up Hi Aravindan

Quote:
Originally Posted by Aravindan View Post
Hi,

I am also experiencing numbness, tingling, burning sensation and weakness from back side of my left thigh through my leg and foot for the past 2 years.

This has happened after severe back pain followed by Diskectemy and fusioning done to my L4-L5 position.

can any body guide me to get relief.
You might go to the people who did your fusion and tell them an update. They may give a referral or start treatment for symptoms themselves. These days the go to drug in the Neurapathy world is Gabapentin. Some find relief to some degree and some have side effects that outweigh the relief. I started at 300mg/day and went up to 900. I have read that some go up to over 2500 mg/day. There is no clear roadmap to relief. Some other basics need to be investigated. If you are low in B-12 or vitamin-D, etc. I quit the Gaba but would go back and try a higher dose if I get worse. Good Luck, Ken in Texas.
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Old 02-18-2015, 02:00 PM #6
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Quote:
Originally Posted by Aravindan View Post
Hi,

I am also experiencing numbness, tingling, burning sensation and weakness from back side of my left thigh through my leg and foot for the past 2 years.

This has happened after severe back pain followed by Diskectemy and fusioning done to my L4-L5 position.

can any body guide me to get relief.
For back problems, I really like what John Bergman has to say. See him on youtube. In your case, since it sounds like a spinal issue, I would sure pursue getting the problem corrected at its source, and this may require a chiropractor rather than an MD. You may need some drugs to tolerate the neuropathy pain (if that's what it is) in the meantime. I have found gabapentin and tramadol useful. Other common ones are Cymbalta & Lyrica. As when trying to heal any problem, keep your body healthy. Read lots of posts on this forum, lots of good tips for PN sufferers. Good luck.
Ron
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Old 02-20-2015, 09:45 PM #7
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Quote:
Originally Posted by janieg View Post
Hi Dustin,

Sorry you find yourself here.

I'd like to reiterate Ron's suggestion of requesting an Oral Glucose Tolerance Test. I definitely am on the diabetes spectrum despite having perfectly normal Fasting Blood Glucose and A1c results. My problem showed up on the Oral Glucose Tolerance Test as well as home monitoring. If I eat a high carb meal, my blood glucose remains way too high for hours. Still, all my diabetes screening values are normal.

I personally feel anyone who ends up with an idiopathic neuropathy diagnosis should get this test. I know Johns Hopkins is currently doing a clinical study on the effects of even mildly elevated blood sugar and neuropathy. Second one down...

I should add, though, that I have no idea if this is the cause of my neuropathy or not, but it remains a possibility, so I'm taking corrective action with my diet in case it is. Either way, it's good I caught the insulin resistance very early.
Hello janieg,

I had to delete the link in the quote cause it would not let me post with it under 10 posts otherwise.

Yeah, I am going to take Ron's suggestion and get my glucose levels checked. It is a good idea for you to take corrective action early, it cannot hurt anything. I am glad you caught that early.

I do wonder if eating carbs has anything to do with this.

I am going to check out some of the other threads on this site to see if they are of further help. Thanks.
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Old 02-20-2015, 09:39 PM #8
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Hello Ron,

Thanks and yeah it has been stressful.

My b levels were checked along with diabetes, and they were fine. I do take some supplements. I started taking them since last year when this all started. I take a chewable multi vitamin. I also take b12 500mcg one a day, b6 100mg one a day, flax oil capsules for omegas 3s and a few others for other things.

That is interesting you are vegan, I am vegetarian. I have given thought to veganism but that seems rather hard. My girlfriend is vegetarian too and she sometimes cooks vegan meals. I used to cook more, but my cooking has grown lazy with lots of pain issues.

I see the supplements link and will go through it.

The family thing is complicated cause I never knew my dad, he left when I was a baby. So his side of the family is a total mystery. My grandma has parkinsons, but I am not sure if that is a related cause or not. As far as I know, no family has had neuropathy. But I cannot speak for sure since my fathers side is an unknown factor.

I'm gonna give those podcasts a listen, and I am hoping when the snow melts in Michigan I can move around come the spring.
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Old 02-22-2015, 11:46 PM #9
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Quote:
Originally Posted by dustinc View Post
...That is interesting you are vegan, I am vegetarian. I have given thought to veganism but that seems rather hard. My girlfriend is vegetarian too and she sometimes cooks vegan meals. I used to cook more, but my cooking has grown lazy with lots of pain issues...
I am not strictly vegan (except for Lent this year I am eating no processed food or animal products, except apparently not Sundays since I ate half a cupcake today), but I prepare almost all of my meals and seldom use any animal products. The rest of my family is omnivorous and I have bites of their food sometimes. American food is very tempting (which of course is why it is so successful, 69% of adults are overweight, and 35% of adults are obese). Are you saying you are not vegan only in that you eat dairy and eggs? I don't have any trouble at all avoiding these, assuming that I am cooking for myself, not sure why you would find it difficult. I really like the podcast "Main Street Vegan", and the book. Victoria Moran is a great supporter of veganism and a great speaker. It seems that most of her motivation comes from her disgust at the treatment of animals in the factory farming that we use, but there is a lot of health info as well.

Main Street Vegan podcast -- http://www.unity.fm/program/MainStreetVegan
Susan Voisin's vegan recipes etc -- http://fatfreevegan.com/
**

Ron

Last edited by Chemar; 02-23-2015 at 07:26 AM. Reason: NT guidelines re other groups
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Old 02-23-2015, 09:04 PM #10
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I am not strictly vegan (except for Lent this year I am eating no processed food or animal products, except apparently not Sundays since I ate half a cupcake today), but I prepare almost all of my meals and seldom use any animal products. The rest of my family is omnivorous and I have bites of their food sometimes. American food is very tempting (which of course is why it is so successful, 69% of adults are overweight, and 35% of adults are obese). Are you saying you are not vegan only in that you eat dairy and eggs? I don't have any trouble at all avoiding these, assuming that I am cooking for myself, not sure why you would find it difficult. I really like the podcast "Main Street Vegan", and the book. Victoria Moran is a great supporter of veganism and a great speaker. It seems that most of her motivation comes from her disgust at the treatment of animals in the factory farming that we use, but there is a lot of health info as well.

Ron

Well, I do not eat any meat at all. My main issue with being vegan would be milk and cheese are in so many things, for example coffee creamer. Even the "non dairy" creamer has casein, and I would have to not buy any store flavored coffee creamers. I do not eat egg often or even really like eggs much. I use flax seed as an egg replacer in baking products.

Another example is vegetarian products like morning star, they have egg in most of their products. I like to eat morning star on occasion. I guess those are examples of products I'd not be able to buy.

I try to avoid animal products as often as I can. I do not buy anything with gelatin either. So no marshmallows. I also find their are vegan substitutes for things like marshmallows online but are very expensive.

Also when me and my girlfriend go out to eat with her parents on occasion, if I was vegan there would not be much to get. If I go with them to a bar I can only get pizza and fried food. I don't eat fried food much and only when I go out with them. Usually all I can get is pizza, cheese sticks, or poppers.

I guess I am just saying that I already have a lot of limits as a vegetarian. I have been vegetarian since I was 17. I am 26.

I don't really like American food much. I actually like oriental food more. My favorite food is Thai food because I love spicy and they have so many vegan options. I like their vegetable curry with tofu. It is my favorite dish. I also like Indian and Lebanese foods.

I think that is really awesome you prepare most of your meals without animal products. We are working on ways of slowly eliminating animal products like dairy and eggs. Like I said, I don't like them that much, it is just an ingredient in things. I can work on it more though, there is more I can eliminate from my diet. I am vegetarian because of animal cruelty mainly. I will check out the podcast.

I got my girlfriend a book by Dr. Neal Barnard, he is vegan and founding president of the Physicians Committee for Responsible Medicine. He has a vegan cookbook, we have made some good recipes from that book.
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