[janek555]

I am 37 yard old and have had right lowe leg weakness for several months
and have been having issues with my balance on that leg, it feels very unsteady
and I can't walk very well, I also have pain in my toes both sides and tingling
I have seen a neurologist and had a nerve conduction/ emg done showing
nerve conduction: marked prolongation of distal latency of pernoeal nerve and low normal CMAP amplitudes and low normal conduction velocity. Left perineal nerve slight prolongation of distal latency with normal conduction and amplitudes. Left tibial nerve showed prolonged distal latency and conduction velocity with lower limits of normal and normal amplitudes. Right tibial nerve showed slight prolongation of distal latency with normal amplitudes and low normal conduction velocity. Sensory conduction test was normal. EMG was normal

So the problem I was told is in the motor nerves suggesting motor peripheral neuropathy ?

My question is do individuals with neuropathy have balance issues from the beginning of the diagnosis or is that something that happens once your feet go numb and you can't feel the floor. I'm trying to figure out if my balance problem is coming from the peripheral neuropathy or something else?

Thank you

Jane

[Kitt]

Welcome janek555.

Does anyone in your family have similar symptoms. Thank you.

[janek555]

Thank you for your reply
No one in my family has similar problems, my mom and dad are
both healthy, and I am truly worried with this as I have two small children
one year old and five year old ho count on me day and night .... I cannot imagine
besoming disabled by this...I don't know what they will do without their mom
being able to move around

Jane

[Neuroproblem]

since you mentioned balance problems, you should see a Movement disorder specialist, the ones that specializes in movements and balance

[Pel]

Hi Jane - Just logged in for the 1st time and found you - not very computer literate with this sort of stuff so may never find you again , but hope so!
Had a right hip replacement in October 2014 and suffered nerve damage tho' consultants reluctant to discuss. Just had nerve conduction studies and needle electromyography privately and results show:

'R sural and superficial peroneal sensory responses unrecordable; unrecordable response from EDB on R peroneal nerve and diminished response from R tibialis anterior and reduced R tibial motor response; needle EMG studies show frequent positive sharp waves in R tibialis anterior and gastrocnemius with long duration polyphasic units recordable from both these muscles.

Significant degree of R sciatic nerve lesion resulting in sensory and motor axonal loss in distribution of both peroneal and tibial divisions - paraesthesia in R leg below knee and weakness of R ankle dorsiflexion, plantar flexion and eversion. There is electrophysiological support for continuity of both peroneal and tibial motor axons so prospect of further recovery but can't predict full recovery.'

Am doing more exercises than I ever thought possible without going near a gym - told I must exercise to regain my calf muscles - but now have tendonitis in my ankle as a result of a badly fitting orthotic so have to scale back for a few weeks and unable to go out as splint aggravates the swelling. Am pretty much housebound anyway as I live alone in a hilly area (garden on 3 levels so the weeds will be having a good year) and no idea how long before any chance of driving again. Can understand your worries re coping with the little ones - I'm barred from granny duties for the foreseeable future in case of accidents.

Want to explore options for alternative orthotics which won't affect ankle - have seen something online which seems to be a cuff below knee - if anyone knows of anything all advice greatly appreciated. Hope you improve - hope we all do - and will try to keep in touch computer brain willing!

[zkrp01]

Originally Posted by janek555

I am 37 yard old and have had right lowe leg weakness for several months
and have been having issues with my balance on that leg, it feels very unsteady
and I can't walk very well, I also have pain in my toes both sides and tingling
I have seen a neurologist and had a nerve conduction/ emg done showing
nerve conduction: marked prolongation of distal latency of pernoeal nerve and low normal CMAP amplitudes and low normal conduction velocity. Left perineal nerve slight prolongation of distal latency with normal conduction and amplitudes. Left tibial nerve showed prolonged distal latency and conduction velocity with lower limits of normal and normal amplitudes. Right tibial nerve showed slight prolongation of distal latency with normal amplitudes and low normal conduction velocity. Sensory conduction test was normal. EMG was normal

So the problem I was told is in the motor nerves suggesting motor peripheral neuropathy ?

My question is do individuals with neuropathy have balance issues from the beginning of the diagnosis or is that something that happens once your feet go numb and you can't feel the floor. I'm trying to figure out if my balance problem is coming from the peripheral neuropathy or something else?

Thank you

Jane

I had a car accident and not very bad. I had subsequent loss of leg strength and then came balance issues. Did you have any trauma to the knee or lumbar ? I can still feel everything w/ toes but do have numbness present. I was a diabetic, still am. You might Google Amyotrophy, also use the engine here at NT. I know you are trying to connect the dots, hope this helps, Ken in Texas.

[Kitt]

Welcome Pel.

[ger715]

Originally Posted by janek555

I am 37 yard old and have had right lowe leg weakness for several months
and have been having issues with my balance on that leg, it feels very unsteady
and I can't walk very well, I also have pain in my toes both sides and tingling
I have seen a neurologist and had a nerve conduction/ emg done showing
nerve conduction: marked prolongation of distal latency of pernoeal nerve and low normal CMAP amplitudes and low normal conduction velocity. Left perineal nerve slight prolongation of distal latency with normal conduction and amplitudes. Left tibial nerve showed prolonged distal latency and conduction velocity with lower limits of normal and normal amplitudes. Right tibial nerve showed slight prolongation of distal latency with normal amplitudes and low normal conduction velocity. Sensory conduction test was normal. EMG was normal

So the problem I was told is in the motor nerves suggesting motor peripheral neuropathy ?

My question is do individuals with neuropathy have balance issues from the beginning of the diagnosis or is that something that happens once your feet go numb and you can't feel the floor. I'm trying to figure out if my balance problem is coming from the peripheral neuropathy or something else?

Thank you

Jane

I have had PN for about 6 yrs. I do have the burning of the ankle and feet; especially when I have been on my feet for any length of time. I do take meds for the pain; but often when the burning is troublesome, I will sit in my comfortable lounger with a couple of pillows on the floor to elevate my feet for a little while. Most of the time this really helps to give me a new start. I still do not have the numbness you mentioned.

The balance at this early stage may be temporary. I do have issues some issues with balance but in the house I am pretty much okay. I can always brace myself on something if need be. When going out and about, I use a cane to steady myself, as well as it helps from other people accidentally bumping into me.

Should this be PN, most likely you will not get to a stage where taking care of your chlldren will be a problem.

Gerry