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Old 03-06-2015, 03:59 PM #1
canagirl canagirl is offline
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Originally Posted by zkrp01 View Post
in an earlier post that you took a medication that triggered everything. That would be huge for many sufferers who search for a cause. Your symptoms sound like others here that have Chemo Induced PN, Search CIPN and tell the story of what this medication was, Perhaps someone else has been there. Good Luck, Ken in Texas.
Hi Ken,

I really appreciate your responses. I feel so alone and don't know where to turn. I really do need responses from everyone that I can.

Thank you so much.
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Old 03-06-2015, 04:20 PM #2
Healthgirl Healthgirl is offline
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Originally Posted by canagirl View Post
Hi Ken,

I really appreciate your responses. I feel so alone and don't know where to turn. I really do need responses from everyone that I can.

Thank you so much.
Canagirl,
I think it would be helpful if you could tell your story from the beginning. I don't think anyone has enough details to be able to offer their ideas or compare to their conditions. The skin burning is consistent with SFN. That is all I can say.
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Anico (06-13-2015)
Old 03-08-2015, 11:38 AM #3
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... My Dr. doesn't think this is SFN b/c I don't show clinical evidence of SFN.

Tests so far
MRI - head, neck, full back - all normal
EMG - right leg and left arm - came back with carpal tunnel in left arm
EEg - normal
Bloodwork - Ca, Mg, Potassium, glucose, iron, B12, copper, ANA, lyme, Igg, Iga, Igm, female hormones, testosterone, (some more I can't remember) - all normal
Urine - norepinephrine, cortisol - normal

...

Maybe someone who knows more than me about this can chime in, but my current understanding is that a skin biopsy is the only way of showing "clinical evidence" of SFN. All the other tests would be normal. Or am I misunderstanding?
Last edited by janieg; 03-08-2015 at 11:40 AM. Reason: added tests taken from original post
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Old 04-28-2015, 10:19 PM #4
maxzombie31 maxzombie31 is offline
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The neurotin had caused me much more pain than what I was having before.
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