Hi Healthgirl,
My neuropathy is idiopathic, so far no cause can be found, but my Doctor does suspect that mine may be caused from a vaccine I took in July 2010. It was a Tdap vaccine. I didn't think that the numbness and tingling could get worse, but it has especially in my hands. I also feel like I'm losing strength. This is such a terrible disease, I just hope some of my other nervous system will be spared, but I might be showing signs of Autoaunomic problems. How did yours start? What Autoaunomic problems do you have? How long have you had full body SFN? Mine came on so quickly,within a matter of a few months. Thanks for answering my questions. Sorry you are going through this. Please keep me informed on any information you might find that can help this condition. I will do the same. I haven't met anyone else with full body SFN. Have a blessed day. Jan

My first symptoms were a year and a half ago. I was having a sleep disturbance that would happen just as soon as I was dozing off. All of a sudden I'd feel that peaceful feeling in the first cycle of sleep and then a surge of vibration would come up from my chest/neck and then my heart would race. I was having heart palpitations a lot. Then I started having waves of vertigo and episodes of absolute exhaustion that would come over me and then pass. The only SFN symptoms I had were my left foot and thigh and groin would go numb and tingle from certain positions and my left hand had a bit of an electrical tingling feeling at times. Sometimes my toes in both feet and hands would get numbish when it was anything under 65 degrees. A few times I had random numb spots on my body.The autonomic stuff started happening less and that was it for about 10 months and then I started having orthostatic hypotension all the time. Almost every time i got up from sitting or squatting everything was black and I was dizzy. Then I started having shooting nerve pain from my shoulders to arms to hands and I wasn't able to lift heavy weights or do as many pushups. This lasted about 3 months and kept getting worse. Then one day 6 months ago, I woke up and couldn't move my neck. I had severe muscle spasms in both sides all through my traps. I went to the e room and was given muscle relaxers and pain killers and no one including me thought it was a big deal. Was sent for MRI and orthopedist and told it was 2 cervical herniated discs. Things just kept getting worse with my neck and arm weakness and then 2 months later, I could barely swallow food, still couldn't turn my neck and the nerve pain was shooting down into my legs. Then the muscle twitches, skin burning, wet spots, cold feeling like hot, and more excruciating pain went all over... and here I am now. Right this second is not so bad though, but I did take 1/2 of an oxycodone and 1/2 of a valium to give myself a break. How exactly did yours start?

Mine started with numbness in two of my toes on my left foot, then I had burning pain in my left leg about 2 months later. I couldn't stand for very long or that pain in my left leg would get really bad. About 2 months after that the burning pain started going up into both of my arms. It was so weird, I remember sitting in a chair one night and I could feel
that burning pain traveling up both of my arms, from there things progressed very quickly, the burning stinging numbness moved up into the rest of my body, now I have it everywhere. That all started in May of 2011, I thought that things couldn't get any worse but boy was I wrong, about 4 weeks ago my hands started getting worse, more burning then before, more numbness, and I feel very weak in my hands, my right hand is worse then my left, but I can feel that my left hand is starting to feel the same as my right hand. I'm not really sure what else can be done for me. I just want a definitive answer on what's happening to me, but I wonder if I will ever truly know the answer. I think I may have to increase my pain meds. The only thing I take for this is 300mg. Of gabapentin at bedtime. This drug makes me drowsy so I can't handle it during the day. Tomorrow I am starting a strict anti inflammatory diet, and accupuncture. Am praying that this will help. I am a Christian and my hope is in The Lord, I pray everyday that he will give me an answer to this chronic pain. I will let you know how this diet works for me. Sure hope you find answers as well.

Did a doctor confirm this as a autonomic symptom? The reason I've asked I've had this off and on for YEARS. I also suffer from anxiety and panic attacks so I figured it was anxiety coming on as I was drifting off to sleep. I know several people with anxiety disorders that have this EXACT same thing.