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Old 03-19-2015, 04:29 AM #15
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
10 yr Member
JoannaP79 JoannaP79 is offline
Member
 
Join Date: Feb 2015
Location: South England
Posts: 246
10 yr Member
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Quote:
Originally Posted by xrox View Post
Joanna,

Is there anything that gives you relief from the SFN? Have you tri. ed a TENS uni.t or IVIG therapy?

Cheers
I don't believe for one minute anxiety caused this for you. It may well exacerbate it though.
Im taking gabapentin, that takes the edge off a bit.
I'm seeing neuro today, I am asking to be considered for ivig and will pursue this until they agree.
Other than that swimming gives me temp relief - helps the AS too.
So its only symptom management really. Ive got a tens but havent tried that yet.
I also wear certain clothes now so ones light on the skin. Fashion has gone right out the window!
I will update you on meeting with the neuro today!

I don't have dry mouth or eyes either. That can be absent with sjorgens I believe. It is so much more than the dry mouth I believe.
Are you in the UK BTW? Just thinking about NHS vs I surance issues when accessing ivig.
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