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Old 03-22-2015, 12:51 PM #1
baba222 baba222 is offline
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Quote:
Originally Posted by Susanne C. View Post
This comes up so often, it really is a measure of how isolating chronic illness is. We have a painful, debilitating, often progressive disease and the need to be understood is overwhelming. The likelihood of actually being understood is minuscule.
This emotional isolation may be the worst part.
Yes, this is spot on. I am also somewhat ashamed of even responding. Someone has suggested journaling, but that makes it even more painful and I would not like for my husband or child to read it.
If not for NEUROTALK, I do not know what I would do.
And I know that I am probably not in as bad a shape as most.
Still going through the stages of grief.
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echoes long ago (03-22-2015), Kitt (03-22-2015)
Old 03-22-2015, 12:59 PM #2
Kitt Kitt is offline
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A person with CMT is constantly going thru the stages of grief because it is progressive. Not a great thing.

When asked about CMT I never say much unless the person is truly interested. Other peoples eyes start to glaze over. I change the subject.
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