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Old 04-15-2015, 02:55 PM #31
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Magnesium citrate makes a difference and improves this symptom for me.
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Old 04-15-2015, 02:58 PM #32
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Originally Posted by kneed2no View Post
Good to know. It just seemed like no one was mentioning this symptom and I was curious. I will try the magnesium again though I have tried some in the past. I do, however, think there is a difference between "everyone gets twitches" and the type of fasciculations that I experience and it sounds like others do too. True, everyone gets a twitch here and there, now and again but I am referring to a much more persistent type of fasciculation. Along with this, I too have experienced cramping in my feet - sometimes lasts all day and nothing improves it.
I don't know anyone that gets fasiculations besides an aunt who has diabetes and a host of other problems. I just recently found out about her.

When I first had them, I filmed them and then showed the video to people. My doctor said that they can come with small fiber neuropathy.

Several friends and family said that they never had that. Cramps yes, but not fasiculations.

I have been taking magnesium due to folks' suggestions (thank you neurotalk) here and that has helped me. I still get them, mostly when lying down.
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Old 04-15-2015, 07:52 PM #33
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Until I developed peripheral neuropathy and had fasciculations myself, I never knew anyone else who had them or who talked about it. Fasciculations talked about here involve a duration over a period of time with relative frequency, with no other cause such as over exertion. It doesnt refer to a twitch here or there.
For people with peripheral neuropathy it signals that there is involvement of the motor nerves which are affecting the muscles.

I did work where there were periods of time of extreme strenuous exertion and high stress and never had them before my feet started going numb. I never heard of anyone at work having them either. I dont think they are all that common.
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Old 04-15-2015, 08:52 PM #34
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I do know people that have twitching that lasts but eventually goes away. Again I think its more common but some people simply don't talk about it. When someone asks me in the store or at work "how are you doing" I don't reply "well I'm having some persistent fasciculations, how are you doing?" lol

My sisters, wife and mom have had fasciculations that simply go away with time.
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Old 04-16-2015, 03:49 AM #35
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Until I developed peripheral neuropathy and had fasciculations myself, I never knew anyone else who had them or who talked about it. Fasciculations talked about here involve a duration over a period of time with relative frequency, with no other cause such as over exertion. It doesnt refer to a twitch here or there.
For people with peripheral neuropathy it signals that there is involvement of the motor nerves which are affecting the muscles.

I did work where there were periods of time of extreme strenuous exertion and high stress and never had them before my feet started going numb. I never heard of anyone at work having them either. I dont think they are all that common.
Before i had normal twitching, but after my unndiagnosed neuropathy, began, my twitching went hay wire, i get twitching in unusual places, but its more random than pins and needles feeling, or loss of feeling, but im pretty sure its related.
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Old 04-16-2015, 06:08 AM #36
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I do know people that have twitching that lasts but eventually goes away. Again I think its more common but some people simply don't talk about it. When someone asks me in the store or at work "how are you doing" I don't reply "well I'm having some persistent fasciculations, how are you doing?" lol

My sisters, wife and mom have had fasciculations that simply go away with time.
if your sisters plural and your mother have periods of fasciculations maybe you should be exploring a genetic cause for your symptoms or maybe they are all under stress.
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Old 04-16-2015, 07:06 AM #37
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Besides low magnesium, low blood sugar spells is a common cause of twitching muscles:

http://symptomchecker.webmd.com/mult...ns=49|50|49|50

I read a book on hypoglycemia once that claimed up to 70% of people having a low sugar attack will have muscle twitching.
Low blood sugar also causes feelings of anxiety, and since that topic comes up here often, it needs to be addressed again.

The best way to deal with low sugar attacks is to clean up your diet, avoid white carbs and sugar and eat balanced meals with some protein in each one, and lower glycemic vegetable or fruit carbs. Some fruits are lower than others. Bananas are high and peaches much lower, for example. Investigate the Book or online by Dr. Barry Sears who developed The Zone diet. Eating this way is rather easy, and controls blood sugar as well. The Zone encourages the consumption of Omega-3's also, and limiting inflammatory high amounts of Omega-6's. A high inflammatory diet is going to release cytokines from the Cox-2 enzyme and those may trigger the twitching.
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Old 04-22-2015, 04:20 AM #38
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Hi everyone - I really need to ask for your support here. I am in a very bad way and have some questions about your twitching/fasciculuations.

I am having a hard time with my twitches, I keep thinking they are due to MND. I have a diagnosis of plexus neuritis, but it is going to be double checked this week by two different neuros, tomorrow and Friday. I have some questions and would like to see if I am alone. I have had random, widespread twitching for 2 years now, but these twitches in my affected arm are different.
  1. Has anyone else had this fear with their twitching - that it could be due to something even more sinister than neuropathy?
  2. Is twitching a very common symptom of neuropathy, or just somewhat common?
  3. Do you have twitching in one spot, or several spots, that are like "hot spots" - where in that particular spot, the twitching is more constant? I have this area on my forearm that keeps acting up.
  4. Are they constant, meaning non-stop, or do they break/pause, but then start back up again? Mine break/pause.
  5. Do you have weakness with the twitching? I do.
  6. If yes, is the twitching in the weak area or different areas?
  7. Does anything aggravate seem to aggravate the twitching? Mine seem to act up after lots of movement.
  8. Do you have pain in the area of twitching?
  9. Do your twitches stop when using the muscle, or do they just keep going? Mine do both.
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Old 04-22-2015, 08:13 AM #39
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Quote:
Originally Posted by twitchwitch View Post
Hi everyone - I really need to ask for your support here. I am in a very bad way and have some questions about your twitching/fasciculuations.

I am having a hard time with my twitches, I keep thinking they are due to MND. I have a diagnosis of plexus neuritis, but it is going to be double checked this week by two different neuros, tomorrow and Friday. I have some questions and would like to see if I am alone. I have had random, widespread twitching for 2 years now, but these twitches in my affected arm are different.
  1. Has anyone else had this fear with their twitching - that it could be due to something even more sinister than neuropathy?
  2. Is twitching a very common symptom of neuropathy, or just somewhat common?
  3. Do you have twitching in one spot, or several spots, that are like "hot spots" - where in that particular spot, the twitching is more constant? I have this area on my forearm that keeps acting up.
  4. Are they constant, meaning non-stop, or do they break/pause, but then start back up again? Mine break/pause.
  5. Do you have weakness with the twitching? I do.
  6. If yes, is the twitching in the weak area or different areas?
  7. Does anything aggravate seem to aggravate the twitching? Mine seem to act up after lots of movement.
  8. Do you have pain in the area of twitching?
  9. Do your twitches stop when using the muscle, or do they just keep going? Mine do both.
Twitchwitch: I know what you are going through - I was in a very similar place several months ago. I did so much research on ALS/MND and BFS that I could probably write a book on it. Go to your doctor appointments this week. Tell them your fears. Then listen to what they tell you. Hopefully they will be able to reassure you that you don't have what you fear.

But ultimately, time may be the only thing that will convince you. I'm sure you have done your research, so you know that MND is almost always relentlessly progressive. So every day, week, month that goes by without your weakness getting worse should ease your worries more and more.

Do your best to stay calm. Spend time with your family and friends - this will help you keep your mind off of the things that trouble you. Remember: Stress and anxiety will make your symptoms worse - especially twitching (the two leading triggers for BFS are stress/anxiety and physical illnesses virus, etc.)
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Old 04-22-2015, 08:23 AM #40
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Thank you, I am sorry you went through this but it helps to know that someone knows what this is like. I also have said that 'I could write a book'...
My neuros know my fears, and one of the 3 so far says "no to ALS" because of the pain and sensory issues. I did have pain in this arm, big time, in December...since then the pain has died down, but is still there, but the weakness and twitching got worse.

So that is why I wanted to know how common twitching is with neuropathy and characteristics of the twitches people with neuropathy experience.
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- Mar 2015 - Spine herniations at C5/C6 and C6/C7
- Apr 2015 - L. Shoulder/Arm Neuralgic Amyotrophy/Plexus Neuritis

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