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I also see Dr. Chin at Cornell Weill. He is very easy to talk to, and totally accepted and answered my seemingly endless stream of questions.
I did get an NVC and EMG to rule out any motor involvement-which he didn't think I had any way, and he did test me for some obscure things. I also passed the sweat test. I have currently been tested for everything that is known to cause small fiber neuropathy, and everything has been negative. My presentation is also very similar to Glenn's-started as full body burning, and now that has subsided, but I get flares of other symptoms. Who knows what will happen in the future. Dr. Chin is very experienced in autoimmune causes of neuropathies, which many neuros lack. He also made sure to order me a glucose tolerance test, even though my fasting sugar and A1C were both fine. He gave me probably the most thorough physical exam I have had to date, and I have a lot of medical problems, so that's saying something. He was a fairly positive person, but also honest about science's limitations about neuropathy, and his frustrations with it. He is actively part of research when it comes to autoimmune neuropathies, and stated that progress in research can be annoyingly slow. I can't speak about anyone else at Cornell, but I do recommend him. |
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