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Old 05-07-2015, 09:06 AM #5
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en bloc en bloc is offline
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Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Due to the nature of my neuropathy and damage at the dorsal root, I do not think the IVIG has helped in reducing the overall nerve pain. Sorry to say.

However, since being at the higher dose of IVIG for neuropathy treatment, I can see that my autonomic dysfunction has not gotten any worse and even seems to have stabilized in some ways. I also haven't had a fall in almost 5 months, so I think my proprioception may be improving.

The allodynia hypersensation type pain on my legs has definitely improved and that is a SFN symptom...one you my have with your SFN.

Some people get a pretty immediate response to certain symptoms with IVIG. For others it can take a while before noticeable fiber density is increased and pain/burning relief achieved. I think you will know in the first 1-3 infusions whether it will help you.

I would say it is ABSOLUTELY worth a try.

I honestly don't know if you would have to be on it for the rest of your life. In my case, yes, but you are dealing with a different situation, different Dx, and different pain.
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