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Old 05-17-2015, 11:28 PM #1
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Join Date: May 2015
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8 yr Member
questionmark questionmark is offline
Junior Member
 
Join Date: May 2015
Posts: 16
8 yr Member
Default want to vent a little...and ask questions...Im losing my mind

I already made a post on here but am compelled to make another...

I am a 23 year old female

I have not been officially diagnosed with SFN, however the symptoms seem to be such. I have constant bilateral sensations in my hands and feet. It feels like pinpricks, sometimes intense burning, sometimes like they are falling asleep. It does seem they do fall asleep easily. Its pretty constant....way worse at night and worse with heat and humidity. It seems to be in my calf muscles as well...and I feel like they get sore much more easily these days.

This happened near the end of last summer....went away from about early November until April. It just disappeared. I dont know why. This makes me wonder if its autoimmune related because it "flared up."

Getting help from the doctors here (Canada) is not easy. My GP thinks im crazy or something. A neurologist did an MRI of my head and neck, and because its normal just dismissed me. I checked out normal and strength tests and the stand neuro exam. I also had that test where they electrocute you and measure it. That was normal too. My basic blood, Lyme, as well as the neuro tests were done almost a year ago and all came up normal.

My only other problems are that I have problems storing Iron it would seem as my stored iron is always on the lower side. I also have chronic idiopathic constipation since I was 17. I worry that its related to this problem as I feel like all my nerves are just shutting down. This sounds like hypothyroidism to me honestly, but my TSH is always good. Im going to try and get my doctor to check T3, T4 and reverse T3...even if I have to beg her. I am also gonna try for other tests...see if I can get my liver/kidneys test as well as glucose. Hopefully a CBC as well and maybe she will refer me to someone who check for autoimmune issues.

I am taking B12 even though the blood test shows good. This is because I heard something about the methylation cycle being screwy in some people......and they need active B12

Does SFN always get worse? Does it sometimes just stay at a certain point and then not progress? Mine went away for months.....is this a common thing?

My biggest fear is not being able to do fighting....which I have taken up recently and love it more than anything ever....

I also really enjoy running...and I want to learn archery and other survival skills......and I cant help but worry about this affecting my strength. Being physical is like the one thing keeping me sane in my life the past few years and I really do not want to lose that ability.....

I have been paleo the past couple years and his had helped feel much better over all. The past 6 months or so I have been slacking a bit though.

I recently am trying to integrate the paleo autoimmune protocol with the Terry Wahls protocol to see if I can heal that way.

Yeah...i just wanted to share all that. If anyone has any advice Id love to hear it!!!
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