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Old 06-22-2007, 03:03 PM #1
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My sleep has been a little better the past few nights. I am feeling a little down right now. I have started to develope a rash which I am waiting for the doctor to call me back to get me in today. It could be from the LAMOTRIGINE that I started on three weeks ago and uped the dosage a week ago. I'm down, because I wonder if they will ever find a medication that will work to get this pain under some control. This was only my third mediction that has failed. I know there are many more.

Thanks, for being there and listening everyone.
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Old 06-22-2007, 03:55 PM #2
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I had the throbbing pain at night when i lay down as well as the stabbing pains. Interferential therapy helped me immensly in getting those pains under control so that i can lay down and go to sleep. I still get some stabbing, burning pain but the throbbing and degree of pain when i lay down is gone.
Right now my main problems and pain, is total numbness of both feet, loss of balance as a result, some stabbing pains and feeling like i am walking on broken bones when i walk or stand for more than a few minutes.
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Old 06-22-2007, 06:41 PM #3
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Quote:
Originally Posted by HeyJoe View Post
I had the throbbing pain at night when i lay down as well as the stabbing pains. Interferential therapy helped me immensly in getting those pains under control so that i can lay down and go to sleep. I still get some stabbing, burning pain but the throbbing and degree of pain when i lay down is gone.
Right now my main problems and pain, is total numbness of both feet, loss of balance as a result, some stabbing pains and feeling like i am walking on broken bones when i walk or stand for more than a few minutes.
I can totally relate. I use crutches and braces on both legs to help my balance. But I still feel the same way you do
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Old 06-22-2007, 08:07 PM #4
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Default Hi there

And welcome Matia,hope we can help in some way..My kids bought me
a Temper Pedic Mattress,wow was i surprised,prhaps it was all those
phone calls in the middle of the night for songs. Welll to tell the truth
my 2 youngest have beautiful voices,and my oldest is a great story
teller.
But Joe it's hard to explain numb feet that feels like broken bones,isn't
it? You sure get some strange looks,many times from your Dr. There is
no way they have not heard that before. I love being very quiet,and stare
at them,just to see what there response will be. D i get every color Jersy
sheets i can find. I lay on the Superman sheets and think i'm made out
of steel. I also put them on my chairs because those chairs are feeling
mighty picky.

Julie it takes awhile i wish it didn't for pain control,it took me more then
3 yrs. to agree to Morphine Sr. My Dr. gently hugged me and she had a
look of such relief. They are small even doses,you not going to feel
like you do after surgery. But for (me) they help and no not every Dr.
offers this. I'm on 3600 mgs of Neurontin,and my body tells me it's time
for them. But i think they may contruibute to the balance problem,and
i finally over came the puke feelings.So many of the things on the list
caused hive problems. You know when i'm in the hospital in the teaching
hospital,i still hear,and why do they talking so loud( these Dr.s )saying how
come she's on Morphine for PN. I just ask them to ask my Dr.i don't think
ever have,you can be rude to the paitient,but afaid of there dr.s I have
a brother who was never in the hospital except at birth,does he
try to understand my pain no and i hope he never has to. But some of
these Dr's oh just for 3 hrs. and bless the one's we can call in the night.
and bless you all for just being here and understanding. Sue
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Old 06-22-2007, 03:58 PM #5
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Well hello there Matia from New Zealand. How are you doing??

I'm Melody and I have diabetic neuropathy.

Hey guys, guess what the delivery man delivered this morning. Another Visco Elastic Mattress Topper. 4 inches thick. It sprang right into shape after a few hours. And it came with 2 temper pedic like pillows.

We just placed this new one over the other two we have. Now we have 11 inches of an imitation Temper Pedic Mattress.

Alan just laid down and I don't think he's getting up any time soon. It's like laying down on a cloud. You would not believe it.

I made a video of it to show my friends because they live out of state and they wanted to know what it looked like.
*edit* It's exactly like the Temper Pedic but it's way cheaper. We got the queen size.

So now we really sleep on clouds.

Melody
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Last edited by Chemar; 09-10-2010 at 09:25 AM. Reason: edit at Melody's request
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