Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-18-2015, 06:39 PM #4
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 793
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 793
10 yr Member
Default

Sorry you've joined some of us at this juncture.

If it makes you feel any better, I never got a skin biopsy either. After having numerous tests including four MRIs, a spinal tap, and four rounds of bloodwork, my neuro diagnosed me with idiopathic SFN. He said a skin biopsy would confirm the diagnosis, but it wouldn't give any clue as to the cause. He also offered me gabapentin.

I went on to go to an integrative medicine doctor who did a hormone test, a NutrEval test, a food sensitivity test and an Oral Glucose Tolerance Test at my request. I learned of issues, but none that would outwardly explain my neuropathy. The NutrEval test did show, however, that I was low normal on alpha lipoic acid, and she recommended that supplement. I do think it dialed back my symptoms a notch, but by no means cured me.

I haven't given up on finding the cause, but I know that it's going to be up to me. In my 6 month follow up, my GP asked if I wanted any more tests run. She seem amenable to helping me if I come up with something, but is out of ideas herself.

Yes, as you put it, it's a pantload, and we're on our own to figure this out.

My engineering degree didn't prepare me for this.
janieg is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluesfan (06-23-2015), madisongrrl (06-18-2015)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Guess What. da duck Survivors of Suicide 10 08-03-2010 08:10 AM
Guess What??? SallyC The Stumble Inn 4 02-28-2010 04:00 PM
So I guess I'm doing ok? :) dmplaura Multiple Sclerosis 13 11-19-2008 06:35 PM
i guess i should have known drb1264 Multiple Sclerosis 12 10-13-2008 10:17 AM
Guess Who???? WickedGood Reflex Sympathetic Dystrophy (RSD and CRPS) 11 02-18-2007 10:53 AM


All times are GMT -5. The time now is 10:47 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.