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Old 07-08-2015, 09:50 AM #21
Patrick Winter Patrick Winter is offline
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Thank you all. Today i have emg. I am scared how this will go. Is it painfull? Are there any risk?
Does anyone have constant buzzing ot vibrating?
I would like to have a family and i do not know if this is possible.
I started to get these symptons after tcd bubble study. First my toes in both legs thsn after some days legs thN after a week trunk and head and now arms so the whole body. I am scared because it goes fast. Some write only about tingling in legs for example.
The constant buzzing and vibrating sucks doesn't it? But yeah, that's normal. And over time that will likely go away and be replaced with something else. I used to always get the buzzing and vibrating. I use to call it "whole body plugged into and outlet" feeling. You may get a prickling feeling or a burning in weird spots, Then the buzzing may come back. These can be anywhere on your body, it doesn't mean its spreading and taking over it just means your nervous system is getting mixed messages.

I would seriously recommend right now giving up all refined carbohydrates. All the bad stuff. Limit your sugar to as little as humanly possible. Try to avoid potatoes (man thats tough). Breads. All the "white carbs". And, unfortunately artificial sugar is no good either. The body sees it the same way. Man, they will set the nerves off. You basically have to eat a Atkins style diet. Which is great for weight loss and health, but not good for personal satisfaction at times. When you make this adjustment the symptoms should reduce. Not go away but make life more manageable. Then you can try introducing healthy sugars (fruits) back in slowly and see how you handle them. Some are worse than others. Apples and Berries tend to be better tolerated than Oranges, etc.

I would not relate the TCD study to this. There is no evidence of ultrasound's causing neuropathy. They're harmless.

No reason why you couldn't have a family if you ask me. I have 2 kids and they are the ones that keep me going and give me hope for the future. They are what makes me want to keep fighting.

I really think you should talk to doctors, better doctors. Get more than one opinion. Also check for the best ones in your area who specialize in neuropathy. Some are MS guys, some are seizure guys. Make sure Neuropathy is a specialty. If you call a group (which is often the best bet) ask them for the doctor who specializes in peripheral neuropathy.
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Old 07-08-2015, 09:52 AM #22
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Hm is it ok if i have mr of the head and neck without contrast?
Mine were ordered with and without as the neurologist was looking for signs of MS. This post on MedHelp describes why contrast is used.

http://www.medhelp.org/tags/health_p...in-MS?hp_id=23


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Old 07-08-2015, 12:18 PM #23
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Ok thanks. So does anyone experience same symptoms as i? Especially this buzzing or vibrating... Like the skin.is irritated as sth comes across skin
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Old 07-08-2015, 01:22 PM #24
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Ok thanks. So does anyone experience same symptoms as i? Especially this buzzing or vibrating... Like the skin.is irritated as sth comes across skin

I vibrate or buzz from head to toe sometimes. It feels deeper than the skin though....it feels like I have a low level electrical current running through my body.

I also get something I call "the pricklies" which does feel more like a skin-level thing.
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Old 07-08-2015, 02:07 PM #25
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I vibrate or buzz from head to toe sometimes. It feels deeper than the skin though....it feels like I have a low level electrical current running through my body.

I also get something I call "the pricklies" which does feel more like a skin-level thing.
What she said!

My kids see me rubbing my arms and hands together sometimes and say, "daddy you have the pricklies? Did you eat sugar?"

My current symptom is an unbelievable burning in my feet, they literally feel on fire. Icing them down helps. Hard to do it at the office though. :roll eyes: Next week could be something else entirely. Its quite a whirlwind.
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Old 07-08-2015, 02:51 PM #26
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One culprit for burning is the family of vegetables called
nightshades. Potatoes, tomatoes, eggplant, peppers, hot spices.

Look to your diet and see what you are eating. Try doing an elimination of this veggies and see what happens. You might be surprised. Tomatoes have the extra problem of releasing histamine and this causes skin discomforts and burning in some people.

MSG in food also triggers ME.. It is everywhere and unnecessary and the glutamate stimulates the NMDA pain receptors.
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Old 07-08-2015, 03:31 PM #27
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One culprit for burning is the family of vegetables called
nightshades. Potatoes, tomatoes, eggplant, peppers, hot spices.

Look to your diet and see what you are eating. Try doing an elimination of this veggies and see what happens. You might be surprised. Tomatoes have the extra problem of releasing histamine and this causes skin discomforts and burning in some people.

MSG in food also triggers ME.. It is everywhere and unnecessary and the glutamate stimulates the NMDA pain receptors.
Yeah potatoes are basically the same as eating sugar from the spoon. But I usually can tolerate them in small amounts. Maybe i will have to eliminate entirely. Can't eat tomatoes anyway due to years of reflux (which had me on Prevacid for over a decade, which I believe gave me SFN - another story). Don't eat any of the other stuff either.
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Old 07-08-2015, 03:45 PM #28
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My pricklies pre-dated my SFN by a few years. I think they're some kind of a response to physical discomfort. I'm pretty sure I experienced them when I gastritis really bad in 2010 and then shingles in 2011. I wish I knew for sure that they didn't start with shingles, but I just can't remember. All I know for sure now is that they're a "pile on" feature. I never have them when my other symptoms aren't bad, and they're never stand-alone.

Patrick, do you have lidocaine patches for your feet? I find they really do help.
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Old 07-08-2015, 03:50 PM #29
Patrick Winter Patrick Winter is offline
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My pricklies pre-dated my SFN by a few years. I think they're some kind of a response to physical discomfort. I'm pretty sure I experienced them when I gastritis really bad in 2010 and then shingles in 2011. I wish I knew for sure that they didn't start with shingles, but I just can't remember. All I know for sure now is that they're a "pile on" feature. I never have them when my other symptoms aren't bad, and they're never stand-alone.

Patrick, do you have lidocaine patches for your feet? I find they really do help.
NO, but I am getting there. My experience with anything like that is that once the patch or cream wears off the pain comes back seemingly harsher. I keep saying to myself that I have to just give up potatoes completely. Cant seem to do that. I kicked cigarettes and aspartame years ago and they were hard to kick, but potatoes? Its probably the hardest of anything I can think of. So tasty, so good. And its not like corn or peas are any kind of alternative. All the starchy veggies aggravate my SFN. But, I guess the body will force you to eventually.
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Old 07-08-2015, 04:29 PM #30
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Yeah potatoes are basically the same as eating sugar from the spoon. But I usually can tolerate them in small amounts. Maybe i will have to eliminate entirely. Can't eat tomatoes anyway due to years of reflux (which had me on Prevacid for over a decade, which I believe gave me SFN - another story). Don't eat any of the other stuff either.
I sure hope you are using methylB12 now after a decade of acid blocking drugs!
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