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#1 | ||
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Junior Member
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Quote:
Cod Liver Oil - 1,000 2+x day Co-Q10 - 200mg (1 per day) ALA & ALC HCI - 600 and 1000 respectively (1 per day) I've also taken Multi-B Neuropathy support with Benfotiamine 150mg, B2 10mg, B6 10mg, Folic Acid 100mcg, B12 500mcg, B5 50mg but have been taking it more like every second day. Also Vit E, Magnesium L-Threonate50mg plus magnesium lotion at night. |
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#2 | ||
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Member
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Have you kept a journal over time of how the pain is? Video journals are good too. |
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#3 | ||
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Junior Member
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What I've heard most is Irritated and sensitive nerves. One neuro said "I think" you have pn. I do have Raynauds sporadically and its cousin erthymelagia.
But my feeling is at this point, I have to figure this out myself having visited 20 docs. |
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#4 | |||
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Member
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Quote:
http://medicationsense.com/articles/2012/emsup.php http://www.jaycohenmd.com/erythromelalgia.html |
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#5 | |||
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Wisest Elder Ever
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600mg of ALA (the old racemic mixed form is not much). You could try the new improved stabilized R-lipoic acid called NaRALA ... just one of those a day is enough. The old form requires about 1800mg a day over time to work. Doctor's Best makes a good affordable Stabilized R-lipoic acid 100mg: http://www.iherb.com/Doctor-s-Best-B...FUY8gQodXDkL_Q What brand of CoQ-10 do you use? Is it Qunol or another new solubilized form? 200mg of the older types is not much and is not well absorbed. With Qunol only one a day is needed. Do you take statin drugs for cholesterol? If so, you will continue with your nerve problems most likely.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | zkrp01 (07-15-2015) |
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#6 | ||
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Junior Member
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No statin drugs - ever.
Coq10 is from Andrew Lessman I took the R-lipoic in the past. Several bottles of the same brand you recommend. I've ordered it again. |
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#7 | ||
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Member
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To each his own-- somebody famous said that. When I first started out, I wanted to get better and I mean yesterday!!! After a couple of years I have learned a lot from Mrs.D and I-we all owe her so much. If you have baseline numbers such as B-12, you know if you need to supplement or not. If you don't know if you need it or not, its akin to buying insurance. And everyone knows how rich Warren Buffet is. I will always have to supplement B-12 as I was deficient due to years of Metformin and I will continue both. My Endo put me on the CoQ-10, nuff said. He said also that I needed the Gelcap of Vitamin D. I have discontinued 5 or 6 others for a time and do not feel any different. But what if I am messing up???? You see my point? I will always read everything from Mrs.D but I might not take everything I used to in the beginning. I also had a Neuro tell me to stop taking Zinc as a supplement(I had read something on You-Tube)there is a zinc-copper ratio that has to be tested for. My B-12 went from 119 to over 900 and only then did I stop monthly injections and maintain with Foltanx. That was the only difinitive numbers that I knew of. All the rest were"insurance". As a child you didn't know if you are a conservative or a liberal-a Baptist or a Methodist. If you are just getting started with supplements you just don't know which ones are going to be, " your own".
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#8 | |||
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Wisest Elder Ever
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Well, the bottom line is.... if nothing works for you, then you may have a hereditary genetic form of PN.... CMT (Charcot Marie Tooth)
You can investigate testing with Athena labs... which is expensive, but it may provide an answer for you.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | Susanne C. (07-15-2015) |
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#9 | ||
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Grand Magnate
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One of many sites concerning Raynauds.
http://www.niams.nih.gov/health_info...aynauds_ff.asp Another site for erythromelalgia. https://rarediseases.org/rare-diseases/erythromelalgia/ |
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"Thanks for this!" says: | Eskiemom (07-16-2015) |
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#10 | ||
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Member
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I am also in doudt if my supplements work
I used to use acethyl L-carnitine and alpha lipioc acid 1600 mg &borage oil1300mg including Q10 Afterthat i used PEA and vitamine D 2000 iue for a period of maybe 1,5 mouths Nowadays i use Curcubrain,R-lipioc acid Qunol Q10 and somethimes inositol. I know its all trail and error but and especially if you have a toxic PN R-lipioc acid should be used including qunol q10. But i wander if this is doing anything for me. I didnt notice any real difference with al these supplements. I could be wrong but pea and vit d could have made a minor minor difference but overall i reeally havet felt any BIG change when using all this stuf. So what is the right stuff to use????????????????????????????? |
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